Aarabi Mahta Alsadat, Abdi Kianoush, Soleimani Farin
PhD Student, Department of Counseling, Pediatric Neurorehabilitation Research Center, University of Social Welfare and Rehabilitation Sciences, Tehran, Iran.
Associate Professor, Department of Rehabilitation Management, Pediatric Neurorehabilitation Research Center, University of Social Welfare and Rehabilitation Sciences, Tehran, Iran.
BMC Pediatr. 2025 Jan 7;25(1):11. doi: 10.1186/s12887-024-05341-6.
Children with physical disabilities (Having this type of disability can be due to any of the reasons such as cerebral palsy, genetic, developmental, neurodevelopment and any other reasons that cause physical disability in the child) need rehabilitation services. Tele-rehabilitation is a practical approach to provide rehabilitation services for children with rapid and continuous access. This approach has been used more recently and overcomes the limitations of conventional rehabilitation, which involves wasting time, traveling distance, and cost. The purpose of this study is to examine the challenges of telerehabilitation for children with physical disabilities such as cerebral palsy and developmental delay.
This study was conducted with the qualitative approach of content analysis in order to investigate the challenges of tele-rehabilitation services in Tehran in 2023. Twenty-two participants were selected based on purposeful sampling with maximum variation. Data was gathered through semi-structured and in-depth interviews with children's parents and tele-rehabilitation service providers. The interviews lasted between 15 and 75 min, and MAXQDA 10 software was used for data analysis. The conventional content analysis method of Granheim and Lundman was used to analyze the data. In this research, four Guba and Lincoln criteria including creditability, dependency, conformability, and transferability were used to evaluate the trustworthiness of data. This article is part of a more extensive qualitative study that explored the barriers and facilitators of these services.
For the challenges of telerehabilitation services for these children, the researcher faced with 10 categories which were obtained after the investigation. The 10 categories are as follows: unorganized internet infrastructure, lack of a developed program, inefficient technology, disregard for ethical principles, lack of therapist information, visual and auditory limitations, cultural misconceptions, weakness of empathy and therapeutic alliance, Lack of familiarity with telerehabilitation, and the other online therapy problems.
Finally, by identifying these challenges, it is possible to provide services with higher qualities to people of this group by reducing barriers. Also, the policy makers of the mentioned area should take more effective steps in order to provide this type of services to the families of children with physical disabilities, so that it ultimately leads to basic measures to improve the condition of these children.
身体残疾儿童(导致这种残疾的原因可能有多种,如脑瘫、遗传、发育、神经发育以及任何其他导致儿童身体残疾的原因)需要康复服务。远程康复是一种切实可行的方法,可为儿童提供快速且持续的康复服务。这种方法最近才开始使用,克服了传统康复的局限性,传统康复存在浪费时间、路途奔波和成本高的问题。本研究的目的是探讨远程康复对脑瘫和发育迟缓等身体残疾儿童所面临的挑战。
本研究采用内容分析的定性方法,以调查2023年德黑兰远程康复服务的挑战。基于最大差异的目的抽样法选取了22名参与者。通过与儿童家长和远程康复服务提供者进行半结构化和深入访谈收集数据。访谈持续15至75分钟,使用MAXQDA 10软件进行数据分析。采用格兰海姆和伦德曼的传统内容分析方法对数据进行分析。本研究使用了包括可信度、依存性、一致性和可转移性在内的四个古巴和林肯标准来评估数据的可信度。本文是一项更广泛的定性研究的一部分,该研究探讨了这些服务的障碍和促进因素。
对于这些儿童的远程康复服务挑战,研究人员在调查后遇到了10个类别。这10个类别如下:互联网基础设施无序、缺乏完善的项目、技术效率低下、无视伦理原则、缺乏治疗师信息、视觉和听觉限制、文化误解、同理心和治疗联盟薄弱、对远程康复不熟悉以及其他在线治疗问题。
最后,通过识别这些挑战,可以通过减少障碍为这一群体的人们提供更高质量的服务。此外,上述领域的政策制定者应采取更有效的措施,以便为身体残疾儿童的家庭提供此类服务,从而最终采取基本措施改善这些儿童的状况。