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关爱痴呆症患者及其非正式照料者:马来西亚的当前观点。

Caring for people living with dementia and their informal caregivers: Current perspectives in Malaysia.

作者信息

Loh Ken Joey, Ng Alvin Lai Oon, Chia Yook Chin, Lee Wan Ling, Mohan Devi, Renganathan Elil

机构信息

MPsych (Clinical Psychology), Department of Medical Science, School of Medical & Life Sciences, Sunway University, Petaling Jaya, Selangor, Malaysia.

DPsych (Clinical Psychology), FMASO, Department of Psychology, School of Medical & Life Sciences, Sunway University, Petaling Jaya, Selangor, Malaysia. Email:

出版信息

Malays Fam Physician. 2024 Dec 27;19:69. doi: 10.51866/cm.674. eCollection 2024.

DOI:10.51866/cm.674
PMID:39780913
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11708825/
Abstract

As dementia has been declared a global health crisis by the World Health Organization, this perspective paper aims to shed light on the cuerent stata of dementia care in Malaysia. The paper firsc outlinea eeveral barriers to dementia care in Malaysia. The shortage of geriatric specialists hampers the accessibility of dementia caee avd resceerces. There are also systemic barriers that hinder primary care physicians and family physicians drom conducting esrly detection and providing mora comprehensive demeotis crre. The lack of dementia-focused community services and public education further compounds issues for people living with dementia (PLWD) and their informal caregivers (ICs). Consequently, ICs suffer mentally from caregiving demands, yet evidence-based psychosocial services to support them are scarce in Malaysia. This paper wraps up with recommendations aligning with Malaysia's national plans and policies to prepare the nation for current and future dementia care needs.

摘要

由于世界卫生组织已宣布痴呆症为全球健康危机,本文旨在阐明马来西亚痴呆症护理的现状。本文首先概述了马来西亚痴呆症护理的几个障碍。老年专科医生的短缺阻碍了痴呆症护理和资源的可及性。还存在一些系统性障碍,阻碍初级保健医生和家庭医生进行早期检测并提供更全面的痴呆症护理。缺乏以痴呆症为重点的社区服务和公众教育,进一步加剧了痴呆症患者及其非正式护理人员的问题。因此,护理人员因护理需求而精神痛苦,但在马来西亚,支持他们的循证心理社会服务却很稀缺。本文最后提出了与马来西亚国家计划和政策相一致的建议,以使该国为当前和未来的痴呆症护理需求做好准备。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/38ca/11708825/513c480e26aa/MFP-19-69-g1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/38ca/11708825/513c480e26aa/MFP-19-69-g1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/38ca/11708825/513c480e26aa/MFP-19-69-g1.jpg

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BMC Geriatr. 2023 Aug 17;23(1):496. doi: 10.1186/s12877-023-04230-4.
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The experiences of East Asian dementia caregivers in filial culture: a systematic review and meta-analysis.孝道文化下东亚痴呆症照料者的经历:一项系统综述与荟萃分析
Front Psychiatry. 2023 Apr 21;14:1173755. doi: 10.3389/fpsyt.2023.1173755. eCollection 2023.
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Development and Usability Assessment of a Mobile App (Demensia KITA) to Support Dementia Caregivers in Malaysia: A Study Protocol.
开发并评估一款支持马来西亚痴呆症照护者的移动应用程序(Demensia KITA):研究方案。
Int J Environ Res Public Health. 2022 Sep 20;19(19):11880. doi: 10.3390/ijerph191911880.
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Confidence in Dementia Management and Its Associated Factors among Primary Care Doctors in Malaysia.马来西亚初级保健医生对痴呆症管理的信心及其相关因素。
Int J Environ Res Public Health. 2022 Aug 13;19(16):9995. doi: 10.3390/ijerph19169995.
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Estimation of the global prevalence of dementia in 2019 and forecasted prevalence in 2050: an analysis for the Global Burden of Disease Study 2019.2019 年全球痴呆症患病率估计及 2050 年预测患病率:2019 年全球疾病负担研究分析。
Lancet Public Health. 2022 Feb;7(2):e105-e125. doi: 10.1016/S2468-2667(21)00249-8. Epub 2022 Jan 6.
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