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Protecting Privacy When Genetic Databases Are Commercialized.

作者信息

Prince Anya E R, Spector-Bagdady Kayte

机构信息

College of Law, University of Iowa, Iowa City.

Department of Obstetrics and Gynecology, Center for Bioethics and Social Sciences in Medicine, University of Michigan Medical School, Ann Arbor.

出版信息

JAMA. 2025 Feb 25;333(8):665-666. doi: 10.1001/jama.2024.26279.

DOI:10.1001/jama.2024.26279
PMID:39786753
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11870236/
Abstract
摘要

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本文引用的文献

1
The Genetic Information Privacy Act: Drawbacks and Limitations.《遗传信息隐私法》：缺点与局限性
JAMA. 2023 Dec 5;330(21):2049-2050. doi: 10.1001/jama.2023.22345.
2
Ethical Responsibilities for Companies That Process Personal Data.企业处理个人数据的道德责任。
Am J Bioeth. 2023 Nov;23(11):11-23. doi: 10.1080/15265161.2023.2209535. Epub 2023 Jun 1.
3
Reported Interest in Notification Regarding Use of Health Information and Biospecimens.报告对使用健康信息和生物样本进行通知的兴趣。
JAMA. 2022 Aug 2;328(5):474-476. doi: 10.1001/jama.2022.9740.
4
Shadow health records meet new data privacy laws.电子健康档案符合新的数据隐私法。
Science. 2019 Feb 1;363(6426):448-450. doi: 10.1126/science.aav5133.