Shojinaga Satomi, Yoshida Haruo, Kanda Yukihiko, Kumai Yoshihiko, Takahashi Haruo
Department of Otolaryngology - Head and Neck Surgery, Nagasaki University Graduate School of Biomedical Sciences, Nagasaki, JPN.
Department of Otolaryngology - Head and Neck Surgery, National Hospital Organization Nagasaki Medical Center, Ōmura, JPN.
Cureus. 2024 Dec 10;16(12):e75482. doi: 10.7759/cureus.75482. eCollection 2024 Dec.
Objective We aimed to highlight problems faced by parents of infants diagnosed with hearing impairment upon newborn hearing screening (NHS) and to suggest how support might be improved. Methods We distributed a questionnaire to explore difficulties encountered by parents when seeking support, whether they were satisfied with the support, and their unmet needs. We enrolled 101 parents of infants with hearing impairments diagnosed upon NHS (hearing levels: 7.0-105.0 dB, mean: 51.5 dB, standard deviation: 27.7 dB). The results were compared by hearing level, current child age, and residential area. Results Only 46 (46%) parents were satisfied with the support received, and nine (27%) of those whose children exhibited normal hearing were moderately dissatisfied. Medical care was viewed as good, but administrative support was seen as poor; financial assistance was lacking, and regional disparities were apparent. The hearing levels of children whose parents were dissatisfied with total support were statistically significantly lower than those of children whose parents were satisfied (p = 0.0263). Since the quality of medical care has been improving year by year, it may be inferred that, as a result, parents of more recently born children are more satisfied with their medical support. Parents of children with poor hearing levels were more satisfied with educational support than others, perhaps because their children attended special schools. Conclusions There is a need to address issues perceived by parents of children with hearing impairments. The support available, and ways to access that support, must be clarified. Regional disparities in support policies and education must be eliminated, and support requires more human resources.
目的 我们旨在强调新生儿听力筛查（NHS）中被诊断为听力障碍的婴儿的父母所面临的问题，并提出如何改进支持措施。方法 我们发放了一份问卷，以探讨父母在寻求支持时遇到的困难、他们对支持是否满意以及他们未得到满足的需求。我们纳入了101名在NHS中被诊断为听力障碍的婴儿的父母（听力水平：7.0 - 105.0分贝，平均：51.5分贝，标准差：27.7分贝）。结果按听力水平、孩子当前年龄和居住地区进行比较。结果 只有46名（46%）父母对所获得的支持感到满意，其中9名（27%）孩子听力正常的父母有中度不满。医疗护理被认为较好，但行政支持被认为较差；缺乏经济援助，且地区差异明显。父母对总体支持不满意的孩子的听力水平在统计学上显著低于父母满意的孩子（p = 0.0263）。由于医疗护理质量逐年提高，可以推断，因此，最近出生孩子的父母对医疗支持更满意。听力水平差的孩子的父母比其他人对教育支持更满意，可能是因为他们的孩子上了特殊学校。结论 需要解决听力障碍儿童父母所察觉到的问题。必须明确现有的支持措施以及获得该支持的途径。必须消除支持政策和教育方面的地区差异，并且支持需要更多人力资源。
