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儿童轻度双侧或单侧听力损失父母的服务偏好:一项联合分析研究。

Service Preferences of Parents of Children With Mild Bilateral or Unilateral Hearing Loss: A Conjoint Analysis Study.

机构信息

Faculty of Health Sciences, University of Ottawa, Ottawa, Ontario, Canada.

Children's Hospital of Eastern Ontario Research Institute.

出版信息

Ear Hear. 2019 May/Jun;40(3):671-679. doi: 10.1097/AUD.0000000000000651.

Abstract

OBJECTIVE

Universal newborn hearing screening results in substantially more children with mild bilateral and unilateral hearing loss identified in the early years of life. While intervention services for children with moderate loss and greater are generally well-established, considerable uncertainty and variation surrounds the need for intervention services for children with milder losses. This study was undertaken with parents of young children with permanent mild bilateral and unilateral hearing loss to examine their preferences for characteristics associated with intervention services.

DESIGN

Conjoint analysis, a preference-based technique, was employed to study parents' strength of preferences. Using a cross-sectional survey that consisted of eight hypothetical clinic scenarios, we invited parents to make a discrete choice (to select one of two or more different services) between available services with different characteristics. The survey was informed by qualitative interviews conducted for this purpose. The questionnaire was administered to parents receiving intervention services in the province of Ontario, Canada, who were enrolled in a mixed-methods longitudinal study examining outcomes in early-identified children with mild bilateral/unilateral hearing loss. Data were analyzed using a generalized linear model (probit link) to identify attributes of interest for the respondents. Characteristics of the children were entered into the model to control for differences in age of diagnosis, sex, laterality of hearing loss, and hearing aid use.

RESULTS

A total of 51 of 62 invited parents completed the questionnaire. All four attributes of care that were included in the survey were found to be statistically significant, that is, parents valued support for amplification, support for speech-language development, emotional support, and communication from professionals. Analysis showed greater preference for enhanced levels relating to support for speech-language development than for support for amplification. Preference for attributes relating to emotional support and communication were also greater than for support for amplification use.

CONCLUSIONS

Conjoint analysis was used to quantify parents' preferences for service attributes. Parents' values provide insights into the aspects of a service model that should receive consideration in the development of intervention programs for young children with mild bilateral or unilateral hearing loss and their families. Although parents of young children with mild bilateral or unilateral hearing loss valued several components of care, they indicated a clear preference for speech-language support compared with support for amplification use.

摘要

目的

新生儿普遍听力筛查可在生命早期发现更多患有双侧和单侧轻度听力损失的儿童。虽然对于中度及更重度听力损失儿童的干预服务通常已经建立,但对于轻度听力损失儿童的干预服务需求存在相当大的不确定性和差异。本研究对患有永久性双侧和单侧轻度听力损失的幼儿的父母进行了研究,以检查他们对干预服务相关特征的偏好。

设计

联合分析是一种基于偏好的技术,用于研究父母的偏好强度。我们使用横断面调查,该调查由八项假设的诊所场景组成,邀请父母在具有不同特征的可用服务之间进行离散选择(选择两个或更多不同服务中的一个)。该调查是根据为此目的进行的定性访谈进行的。问卷调查对象为在加拿大安大略省接受干预服务的父母,他们参加了一项混合方法纵向研究,该研究旨在研究早期确诊的双侧/单侧轻度听力损失儿童的结果。使用广义线性模型(概率链接)对数据进行分析,以确定受访者感兴趣的属性。将儿童的特征纳入模型中,以控制诊断年龄、性别、听力损失的侧别和助听器使用的差异。

结果

在受邀的 62 位家长中,共有 51 位完成了问卷。调查中包含的四项护理属性均具有统计学意义,即父母重视放大支持、语言发展支持、情感支持和专业人员的沟通。分析表明,与放大支持相比,父母更倾向于支持语言发展。对与情感支持和沟通相关的属性的偏好也大于对放大支持的使用。

结论

联合分析用于量化父母对服务属性的偏好。父母的价值观为制定针对轻度双侧或单侧听力损失儿童及其家庭的干预计划提供了服务模式的各个方面的参考。尽管患有双侧或单侧轻度听力损失的幼儿的父母重视护理的几个方面,但与放大支持的使用相比,他们明确表示更倾向于语言支持。

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