Aguiar Rosaline Bezerra, Lindström Maria
Department of Epidemiology and Global Health, Umeå University, Umeå, Sweden.
AIMS Public Health. 2024 Dec 13;11(4):1198-1222. doi: 10.3934/publichealth.2024062. eCollection 2024.
Persons enduring serious mental illness (SMI) and living in supported housing facilities often receive inadequate care, which can negatively impact their health outcomes. To address these challenges, it is crucial to prioritize interventions that promote personal recovery and address the unique needs of this group. When developing effective, equitable, and relevant interventions, it is essential to consider the experiences of persons with an SMI. By incorporating their perspectives, we can enhance the understanding, and thereby, the design and implementation of activity- and recovery-oriented interventions that promote health, quality of life, and social connectedness in this vulnerable population. Thus, the aim of this study is to explore the stories of participants partaking in Everyday Life Rehabilitation and how they make sense of their engagements in everyday life activities and their recovery processes.
Applying a narrative analysis, this study explores the stories of seven individuals with an SMI residing in Swedish supported housing facilities, participating in the Everyday Life Rehabilitation (ELR) program during six months, and how they retrospectively make meaning of their engagement in everyday life activities and recovery processes.
The participants' stories about their rehabilitation and personal recovery pathways elucidate how the inherent power of the activity, as well as the support the participants received to get started and succeed, had a significant impact on their self-identity, confidence, motivation, mattering, life prospects, and vitality. The participants valued the transparent steps along the process, weekly meetings, the signals, beliefs, and feedback communicated throughout, and the persistent, adaptive, and yet supporting approach in their personal progress.
This study underscores the need for interventions that prioritize meaningful activities and are sensitive to the complexity of the personal recovery process, especially in supported housing facilities. Future research should further explore effective strategies and mechanisms to promote personal recovery and to reduce the stigma associated with SMI.
患有严重精神疾病（SMI）且居住在支持性住房设施中的人往往得到的护理不足，这可能对他们的健康结果产生负面影响。为应对这些挑战，优先考虑促进个人康复并满足该群体独特需求的干预措施至关重要。在制定有效、公平且相关的干预措施时，考虑患有严重精神疾病者的经历至关重要。通过纳入他们的观点，我们可以增进理解，从而改进以活动和康复为导向的干预措施的设计与实施，这些干预措施能促进这一弱势群体的健康、生活质量和社会联系。因此，本研究的目的是探索参与日常生活康复的参与者的故事，以及他们如何理解自己参与日常生活活动及康复过程的经历。
本研究采用叙事分析法，探索了七名患有严重精神疾病且居住在瑞典支持性住房设施中的个体的故事，他们参与了为期六个月的日常生活康复（ELR）项目，以及他们如何回顾性地理解自己参与日常生活活动和康复过程的意义。
参与者关于康复和个人康复途径的故事阐明了活动的内在力量，以及参与者为开始并取得成功所获得的支持，如何对他们的自我认同、信心、动力、重要感、生活前景和活力产生重大影响。参与者重视过程中清晰透明的步骤、每周的会议、贯穿始终传达的信号、信念和反馈，以及在个人进步方面持续、适应性强且支持性的方法。
本研究强调了需要优先开展有意义活动且对个人康复过程的复杂性敏感的干预措施，尤其是在支持性住房设施中。未来的研究应进一步探索促进个人康复和减少与严重精神疾病相关耻辱感的有效策略和机制。
