Direct, non-medical out-of-pocket expenditures for mothers of moderate or late preterm infants in a level II NICU: Comparison of Alberta Family Integrated Care versus standard care.

OBJECTIVE

To compare direct, non-medical out-of-pocket expenditures (OOPE) between mothers receiving Alberta Family Integrated Care (FICare™) versus standard care (SC) during their infant's neonatal intensive care unit (NICU) admission and explore factors influencing spending extremes.

METHODS

In this exploratory, concurrent mixed-methods sub-study, we compared mother-reported OOPE from Alberta FICare™ and SC parent journals. We thematically analyzed hand-written notes from 30 journals with the highest and lowest 5 % of OOPE.

RESULTS

There was no difference in total direct, non-medical OOPE between Alberta FICare™ ( = 194) and SC ( = 132) groups ( = 12,679.50,  = 0.882). Compared to mothers receiving SC, mothers receiving Alberta FICare™ reported spending less for parking ( = 970.00,  < 0.001) and more for food ( = 14,857.50,  0.014) and lodging ( = 15,160.00,  < 0.001). Spending extremes related to travel and proximity of the NICU to their home.

CONCLUSION

Total family financial burden was similar between groups; there were differences in spending categories. Supports to offset OOPE, particularly for families living distant to the NICU or facing transportation challenges, would reduce financial burden and could enhance family-integrated care.

INNOVATION

This novel analysis describes mother-reported OOPEs and strategies to mitigate financial barriers to family integrated care.