Ssembatya Renny, Leslie Abimbola, DeStigter Kristen, Edwards Erica M, Nayiga Joyce, Nakibirango Samalie, Arapa Julian P, Bahati Nicholas, Busingye Blandina, Eremu Thomas, Nakafeero Mary, Ssenoga Micheal F, Williams Frank B, Horn Delia
Imaging the World Africa, Kampala, Uganda.
Department of Radiology, University of Vermont Medical Center, Burlington, USA.
Glob Health Action. 2024 Dec 31;17(1):2436715. doi: 10.1080/16549716.2024.2436715. Epub 2025 Jan 17.
Neonatal and maternal mortality remains high in low- and middle-income countries (LMIC), especially in sub-Saharan Africa. Quality data collection is crucial to understand the magnitude of these problems and to measure the impact of interventions aimed at improving neonatal and maternal mortality. However, data collection in the low-income country setting, especially in rural areas, has been a challenge for researchers, policy makers, and public health officials. Here, we describe the methodology, experience and lessons learned while collecting data at lower-level primary health care facilities in rural Uganda.
Data collection was performed at Health Center III sites in rural Uganda, in partnership with Imaging the World and its affiliate Imaging the World Africa. The primary purpose of the data collection was to study the efficacy and clinical effect of introducing prenatal ultrasound services at these sites. Local data clerks were hired to perform the data collection through a combination of intensive training and on-the-ground support. Frequent oversight was used to support data collection.
Of 2,397 enrolled pregnant women, 1,977 (82.5%) had complete outcome data. Upon independent expert audit, the data were >80% accurate for 10/11 variables and >90% accurate for 6/11 variables. Overall, the data collected at the rural HCs were 90% accurate.
Accurate and complete data collection is possible in an LMIC setting if appropriate training and oversight are employed.
在低收入和中等收入国家(LMIC),尤其是撒哈拉以南非洲地区,新生儿和孕产妇死亡率仍然很高。高质量的数据收集对于了解这些问题的严重程度以及衡量旨在降低新生儿和孕产妇死亡率的干预措施的影响至关重要。然而,在低收入国家,尤其是农村地区的数据收集,一直是研究人员、政策制定者和公共卫生官员面临的一项挑战。在此,我们描述了在乌干达农村地区较低级别的初级卫生保健机构收集数据时所采用的方法、经验和教训。
与“影像世界”及其附属机构“影像非洲”合作,在乌干达农村地区的三级卫生中心进行数据收集。数据收集的主要目的是研究在这些地点引入产前超声服务的疗效和临床效果。通过强化培训和实地支持相结合的方式,雇佣当地数据录入员进行数据收集。通过频繁监督来支持数据收集工作。
在2397名登记的孕妇中,1977名(82.5%)有完整的结局数据。经独立专家审核,11个变量中有10个变量的数据准确率>80%,11个变量中有6个变量的数据准确率>90%。总体而言,在农村卫生中心收集的数据准确率为90%。
如果采用适当的培训和监督,在低收入和中等收入国家的环境中也可以进行准确和完整的数据收集。