Leaune Edouard, Bislimi Kushtrim, Lau-Taï Pauline, Rouzé Héloïse, Chalancon Benoit, Lestienne Laurène, Grandgenevre Pierre, Morgiève Margot, Laplace Nathalie, Vaiva Guillaume, Haesebaert Julie, Poulet Emmanuel
Le Vinatier - Lyon Metropole Academic Hospital Center, Bron, France.
Research on Healthcare Performance (RESHAPE), National Institute for Health Research (INSERM U1290), University Claude Bernard Lyon 1, Lyon, France.
JMIR Ment Health. 2025 Jan 20;12:e56945. doi: 10.2196/56945.
Although suicide bereavement is highly distressing and is associated with an increased risk of suicidal behaviors and mental and physical health impairments, those bereaved by suicide encounter difficulties accessing support. Digital resources offer new forms of support for bereaved people. However, digital resources dedicated to those bereaved by suicide are still limited.
This paper aimed to develop and implement an evidence-based, innovative, and adaptive online resource for people bereaved by suicide, based on their needs and expectations.
We performed a mixed methods, participatory, user-centered study seeking to build resources from the perspectives of people bereaved by suicide and professionals or volunteers working in the field of postvention. We used the Information System Research framework, which uses a three-stage research cycle, including (1) the relevance cycle, (2) the design cycle, and (3) the rigor cycle, and the Design Science Research framework.
A total of 478 people participated in the study, including 451 people bereaved by suicide, 8 members of charities, and 19 mental health professionals working in the field of postvention. The development stage of the resource lasted 18 months, from October 2021 to March 2023. A total of 9 focus groups, 1 online survey, 30 usability tests, and 30 semistructured interviews were performed. A website for people bereaved by suicide named "espoir-suicide" was developed that includes (1) evidence-based information on suicide prevention and bereavement, (2) testimonies of people bereaved by suicide, (3) a delayed chat to ask questions on suicide and bereavement to a specialized team of mental health professionals, and (4) an interactive nationwide resource directory. The mean system usability score was 90.3 out of 100 for 30 participants, with 93% (n=28) of them having a rating above 80. Since the implementation of espoir-suicide in March 2023, a total of 19,400 connections have been recorded, 117 local resources have been registered nationwide, and 73 questions have been posted in the chat.
The use of a mixed methods, participatory, user-centered design allowed us to implement an evidence-based, innovative, and functional website for people bereaved by suicide that was highly relevant for fulfilling the needs and expectations of French people bereaved by suicide.
INTERNATIONAL REGISTERED REPORT IDENTIFIER (IRRID): RR2-10.3389/fpsyt.2021.770154.
尽管自杀丧亲之痛令人极度痛苦，且与自杀行为风险增加以及身心健康受损相关，但自杀丧亲者在获得支持方面面临困难。数字资源为丧亲者提供了新的支持形式。然而，专门针对自杀丧亲者的数字资源仍然有限。
本文旨在根据自杀丧亲者的需求和期望，开发并实施一个基于证据、创新且适应性强的在线资源。
我们开展了一项混合方法、参与式、以用户为中心的研究，旨在从自杀丧亲者以及善后领域工作的专业人员或志愿者的角度构建资源。我们使用了信息系统研究框架，该框架采用三阶段研究周期，包括（1）相关性周期、（2）设计周期和（3）严谨性周期，以及设计科学研究框架。
共有478人参与了该研究，其中包括451名自杀丧亲者、8名慈善机构成员以及19名善后领域的心理健康专业人员。该资源的开发阶段从2021年10月持续到2023年3月，历时18个月。共进行了9次焦点小组讨论、1次在线调查、30次可用性测试和30次半结构化访谈。开发了一个名为“espoir-suicide”的面向自杀丧亲者的网站，该网站包括（1）关于自杀预防和丧亲之痛的循证信息，（2）自杀丧亲者的证言，（3）一个延时聊天功能，可向心理健康专业人员专门团队询问有关自杀和丧亲之痛的问题，以及（4）一个交互式的全国资源目录。30名参与者的系统可用性平均得分为90.3分（满分100分），其中93%（n = 28）的评分高于80分。自2023年3月“espoir-suicide”上线以来，共记录了19400次连接，全国范围内登记了117个本地资源，聊天中发布了73个问题。
采用混合方法、参与式、以用户为中心的设计使我们能够为自杀丧亲者实施一个基于证据、创新且实用的网站，该网站对于满足法国自杀丧亲者的需求和期望具有高度相关性。
国际注册报告识别码（IRRID）：RR2-10.3389/fpsyt.2021.770154。
