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[幸福——皮肤病学中以患者为中心的整体医疗保健理念]

[Happiness-A concept for holistic person-centered healthcare in dermatology].

作者信息

Ziehfreund Stefanie, Peifer C, Zink A

机构信息

Klinik und Poliklinik für Dermatologie und Allergologie, Klinikum rechts der Isar, Technische Universität München, TUM School of Medicine and Health, Biedersteiner Str. 29, 80802, München, Deutschland.

Institut für Psychologie, Universität zu Lübeck, Lübeck, Deutschland.

出版信息

Dermatologie (Heidelb). 2025 Feb;76(2):64-71. doi: 10.1007/s00105-024-05454-0. Epub 2025 Jan 22.

DOI:10.1007/s00105-024-05454-0
PMID:39841258
Abstract

BACKGROUND

Happiness is a concept in positive psychology. Studies have shown links between happiness, courses of diseases and health. In dermatology the role of happiness has not yet been sufficiently investigated.

RESEARCH QUESTION

What impact do skin diseases have on individual happiness and what contribution can happiness make to holistic dermatological care?

MATERIAL AND METHODS

Processing of the current literature for a selective overview of primary scientific studies on happiness based on heuristic happiness and subjective well-being measured by positive and negative affects as well as satisfaction with life in dermatology.

RESULTS

Patients with skin diseases show significant impairments in happiness, especially in the positive affect and satisfaction with life compared to the healthy population. The impairments appear to be expressed differently for different dermatoses; for example, patients with skin cancer show significantly higher life satisfaction than other dermatological patients. Influencing factors vary in their strength and direction depending on the operationalization of happiness and the skin disease.

DISCUSSION

Dermatological diseases appear to be associated with impairments in happiness, particularly in the positive affect. Integrating happiness into dermatological care could help to have a better understanding of patients' individual needs in the context of holistic, person-centered healthcare. Future research and specific interventions to improve happiness should be developed to promote positive health outcomes.

摘要

背景

幸福是积极心理学中的一个概念。研究表明幸福与疾病病程及健康之间存在联系。在皮肤病学领域,幸福的作用尚未得到充分研究。

研究问题

皮肤病对个体幸福有何影响,幸福对整体皮肤病护理能做出什么贡献?

材料与方法

梳理当前文献,以基于启发式幸福以及通过积极和消极情绪及皮肤病患者生活满意度衡量的主观幸福感,对幸福的主要科学研究进行选择性概述。

结果

与健康人群相比,皮肤病患者在幸福方面存在显著损害,尤其是在积极情绪和生活满意度方面。不同皮肤病的损害表现似乎有所不同;例如,皮肤癌患者的生活满意度明显高于其他皮肤病患者。影响因素的强度和方向因幸福的操作化定义和皮肤病而异。

讨论

皮肤病似乎与幸福受损有关,尤其是在积极情绪方面。将幸福纳入皮肤病护理有助于在以患者为中心的整体医疗保健背景下更好地理解患者的个体需求。应开展未来研究和具体干预措施以改善幸福,从而促进积极的健康结果。

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本文引用的文献

1
Cracking the code: unveiling the nexus between atopic dermatitis and addictive behavior: a cross-sectional exploration of risk factors.破解密码:揭示特应性皮炎与成瘾行为之间的关联:风险因素的横断面探讨。
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Risk of developing psychiatric disease among adult patients with skin disease: A 9-year national register follow-up study in Norway.
成年皮肤病患者患精神疾病的风险:挪威一项为期9年的全国登记随访研究
Skin Health Dis. 2023 Oct 20;3(6):e294. doi: 10.1002/ski2.294. eCollection 2023 Dec.
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Medication Adherence and Healthcare Costs in Chronically Ill Patients Using German Claims Data.利用德国索赔数据研究慢性病患者的药物依从性和医疗保健费用。
Appl Health Econ Health Policy. 2023 May;21(3):477-487. doi: 10.1007/s40258-023-00797-6. Epub 2023 Mar 18.
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Positive affect treatment targets reward sensitivity: A randomized controlled trial.积极情绪治疗靶向奖励敏感性:一项随机对照试验。
J Consult Clin Psychol. 2023 Jun;91(6):350-366. doi: 10.1037/ccp0000805. Epub 2023 Mar 9.
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Positive Psychology for Substance Use Disorders: A Rationale and Call to Action.物质使用障碍的积极心理学:基本原理与行动呼吁
J Stud Alcohol Drugs. 2022 Nov;83(6):959-961. doi: 10.15288/jsad.22-00259.
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Positive Psychology Themes in Interviews of Children With Atopic Dermatitis: Qualitative Study.特应性皮炎患儿访谈中的积极心理学主题:定性研究
JMIR Pediatr Parent. 2022 Sep 14;5(3):e38725. doi: 10.2196/38725.
8
Adding happiness to complement the Dermatology Quality of Life Index in psoriasis and atopic dermatitis healthcare: a cross-sectional study.在银屑病和特应性皮炎的医疗保健中增加幸福感来补充皮肤病生活质量指数:一项横断面研究。
Eur J Dermatol. 2022 Apr 1;32(2):220-226. doi: 10.1684/ejd.2022.4244.
9
Psoriasis and addiction: assessing mental health based on a cross-sectional study in Germany.银屑病与成瘾:基于德国一项横断面研究评估心理健康状况
Eur J Dermatol. 2021 Dec 1;31(6):722-729. doi: 10.1684/ejd.2021.4146.
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Addictions in patients with atopic dermatitis: a cross-sectional pilot study in Germany.特应性皮炎患者中的成瘾问题:德国横断面初步研究。
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