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改善弱势群体的饮食失调护理:基于生活经历和质量改进的视角

Improving eating disorder care for underserved groups: a lived experience and quality improvement perspective.

作者信息

Asaria Alykhan

机构信息

, London, UK.

出版信息

J Eat Disord. 2025 Jan 22;13(1):11. doi: 10.1186/s40337-024-01145-2.

Abstract

Improvements to eating disorder (ED) care are urgently needed in the United Kingdom (UK) and around the world. Informed by my lived experiences, independent research, and involvement in the underappreciated field of quality improvement (QI), I have written this article to offer ideas on how to improve individuals' access to and experiences of ED care. As I live in the UK, my lived and QI experiences are of the UK's National Health Service (NHS). However, much of this article's content can be applied broadly to healthcare providers around the world, as similar ED care improvements are needed internationally. Furthermore, this commentary is informed by the latest international research.In this paper, I will identify and discuss 12 groups of individuals whom I believe are more likely to be underserved in ED care. The 12 'underserved groups' (USGs) are as follows: [USG. 1] People with longstanding EDs and/or older-age ED sufferers; [USG. 2] Younger children/preadolescents; [USG. 3] People with under-recognised/underappreciated EDs; [USG. 4] People with higher weights; [USG. 5] People with comorbidities; [USG. 6] People with neurodevelopmental conditions (neurodiverse people); [USG. 7] Digitally excluded people; [USG. 8] Socioeconomically and/or sociogeographically disadvantaged people; [USG. 9] Ethnic/racial minorities; [USG. 10] Sexual and gender-diverse people; [USG. 11] Males; [USG. 12] Caregivers/loved ones.ED sufferers/caregivers are also an underserved group as a whole in general mental health care, so broader considerations for improving ED care will be explored in a future publication; these include stigma, research biases, inadequate clinical monitoring and diagnosing, poor-quality treatments, disorganised service transitions, systemic problems/inefficiencies, and underfunding/under-resourcing. Specific recommendations for USGs 1-12 must be considered alongside these and other broader issues. Throughout both articles, I advocate a humanistic care model/approach based on the inexpensive principles of compassion, hope, empathy, appreciation (of identity), and patience ('CHEAP').

摘要

英国和世界各地都迫切需要改善饮食失调(ED)护理。基于我的亲身经历、独立研究以及在质量改进(QI)这一未得到充分重视的领域的参与,我撰写了本文,旨在就如何改善个人获得ED护理的机会以及ED护理体验提供一些想法。由于我生活在英国,我的亲身经历和QI经验都来自英国国民医疗服务体系(NHS)。然而,本文的大部分内容可以广泛应用于世界各地的医疗服务提供者,因为国际上也需要类似的ED护理改善措施。此外,本评论参考了最新的国际研究。

在本文中,我将识别并讨论12类我认为在ED护理中更有可能得不到充分服务的人群。这12个“服务不足群体”(USG)如下:[USG.1]患有长期饮食失调症的人及/或年龄较大的饮食失调患者;[USG.2]年幼儿童/青春期前儿童;[USG.3]未被充分认识/重视的饮食失调患者;[USG.4]体重较高的人;[USG.5]患有合并症的人;[USG.6]患有神经发育疾病的人(神经多样性人群);[USG.7]被数字技术排斥的人;[USG.8]社会经济和/或社会地理上处于不利地位的人;[USG.9]少数族裔/种族群体;[USG.10]性取向和性别多样化的人;[USG.11]男性;[USG.12]护理人员/亲人。

在一般精神卫生护理中,饮食失调患者/护理人员作为一个整体也是服务不足的群体,因此,未来的一篇文章将探讨改善饮食失调护理的更广泛考虑因素;这些因素包括耻辱感、研究偏差、临床监测和诊断不足、治疗质量差、服务过渡混乱、系统性问题/效率低下以及资金不足/资源匮乏。针对USG 1 - 12的具体建议必须与这些以及其他更广泛的问题一并考虑。在这两篇文章中,我都倡导一种基于同情、希望、同理心、对身份的认同和耐心(“CHEAP”)这些低成本原则的人文护理模式/方法。

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