McGrath Carmel, Kennedy Mari-Rose, Gibson Andy, Musse Samira, Kosar Zahra, Dawson Shoba
NIHR Applied Research Collaboration West, University Hospitals Bristol and Weston NHS Foundation Trust, Bristol, UK.
NIHR Health Protection Research Unit in Behavioural Science and Evaluation, Population Health Sciences, Bristol Medical School, University of Bristol, Bristol, UK.
Res Involv Engagem. 2023 Oct 28;9(1):101. doi: 10.1186/s40900-023-00509-3.
Certain communities are underserved by research, resulting in lower inclusion rates, under researched health issues and a lack of attention to how different communities respond to health interventions. Minoritised ethnic groups are often underserved by research and services. They experience health inequalities and face significant barriers to accessing health services. It is recognised that new approaches are needed to reach underserved communities and make research more relevant. The purpose of this work was to utilise World Cafés, a participatory method, to explore research agendas with diverse communities.
Two World Cafés were conducted as research agenda setting activities with individuals from minoritised ethnic communities in Bristol, UK. World Café 1 explored Black and Asian women's perspectives about supporting mental health. World Café 2 with men from the Somali community, focused on prostate cancer. Community members co-developed the focus and questions of each World Café and were also instrumental in recruiting individuals to the sessions and facilitating discussions, including translation. Audio and written records were made of the discussions and from these key issues about each topic were identified, and a visual representation of the discussion was also generated. These were shared with participants to check for accuracy.
Community members identified a range of issues that are important to them in relation to mental health and prostate cancer, including barriers to help seeking and accessing primary and secondary care, ideas for service improvements and a need for health information that is accessible and culturally relevant.
World Cafés are a flexible method that can be successfully adapted for research agenda setting with individuals from minoritised ethnic communities. The role of community members in co-developing the focus of sessions, recruiting community members and co-facilitating sessions is crucial to this success. The discussions at both World Cafés provided a rich insight into the experiences of participants in relation to the topics mental health and prostate cancer and identified issues that are important to these communities that will be followed-up with communities, researchers and clinicians to co-develop research and service improvement strategies.
某些社区在研究方面未得到充分服务，导致纳入率较低、健康问题研究不足，且缺乏对不同社区如何应对健康干预措施的关注。少数族裔群体在研究和服务方面往往得不到充分关注。他们面临健康不平等问题，在获得医疗服务方面存在重大障碍。人们认识到需要新的方法来接触服务不足的社区，并使研究更具相关性。这项工作的目的是利用“世界咖啡馆”这一参与式方法，与不同社区共同探讨研究议程。
举办了两场“世界咖啡馆”活动，作为与英国布里斯托尔少数族裔社区成员共同设定研究议程的活动。第一场“世界咖啡馆”探讨了黑人和亚洲女性对支持心理健康的看法。第二场“世界咖啡馆”与索马里社区的男性一起，聚焦于前列腺癌。社区成员共同确定了每场“世界咖啡馆”的重点和问题，并且在招募参会人员以及推动讨论（包括翻译）方面发挥了重要作用。讨论过程进行了音频和书面记录，从这些记录中确定了关于每个主题的关键问题，还生成了讨论的可视化呈现。这些内容与参与者分享以核实准确性。
社区成员确定了一系列与心理健康和前列腺癌相关且对他们很重要的问题，包括寻求帮助和获得初级及二级医疗服务的障碍、改善服务的想法以及对可获取且具有文化相关性的健康信息的需求。
“世界咖啡馆”是一种灵活的方法，可以成功地适用于与少数族裔社区成员共同设定研究议程。社区成员在共同确定会议重点、招募社区成员以及共同推动会议方面的作用对这一成功至关重要。两场“世界咖啡馆”的讨论都深入洞察了参与者在心理健康和前列腺癌主题方面的经历，并确定了对这些社区很重要的问题，后续将与社区、研究人员和临床医生共同制定研究和服务改进策略。
