Dağ Yeliz Suna, Zengin Mürşide, Yayan Emriye Hilal, Güleç Gülse
J Pediatr Health Care. 2025 May-Jun;39(3):387-395. doi: 10.1016/j.pedhc.2024.11.015. Epub 2025 Jan 26.
In natural disasters, children encounter serious health problems.
This qualitative phenomenological study investigated the problems encountered by children with a diagnosis of celiac disease who lived in the earthquake region of Kahramahmaras in Turkey. Colaizzi method, a phenomenological research method, was used in the study. Data collection involved in-depth interviews conducted with the 'Introductory Information Form' and 'Semi-structured Interview Form,' both developed by the researchers.
This study was conducted with 17 children diagnosed with celiac disease living in the Kahramanmaras earthquake region of Turkey. Four main themes emerged from the data: (1) nutrition security and access problems, (2) dietary noncompliance, (3) psychological effects, and (4) difficulties in accessing health services.
The earthquake not only disrupted the physical and emotional well-being of children with celiac disease but also highlighted systemic vulnerabilities in disaster preparedness and response for individuals with special dietary needs.
在自然灾害中，儿童会遇到严重的健康问题。
本定性现象学研究调查了生活在土耳其卡拉曼马拉斯地震区、被诊断患有乳糜泻的儿童所遇到的问题。研究采用了现象学研究方法——科莱齐方法。数据收集通过研究人员编制的“介绍性信息表”和“半结构化访谈表”进行深入访谈。
本研究对生活在土耳其卡拉曼马拉斯地震区的17名被诊断患有乳糜泻的儿童进行。数据中出现了四个主要主题：（1）营养安全和获取问题，（2）饮食不依从，（3）心理影响，以及（4）获得医疗服务的困难。
地震不仅扰乱了乳糜泻儿童的身心健康，还凸显了在灾害准备和应对中，针对有特殊饮食需求者的系统性脆弱性。
