Hailu Helen, Gay Starla, Chen Wei-Ting, Tuttle Chiquita, Waugh Juanita, Guillory Regina, Williams-Omenka Lenora, Love Barakah, Hollis Taylor, Spinzi Stav, Rosas Lisa G
Department of Epidemiology and Population Health, Stanford School of Medicine, Stanford, California, USA.
Office of Community Engagement, Stanford School of Medicine, Stanford, California, USA.
Psychooncology. 2025 Jan;34(1):e70073. doi: 10.1002/pon.70073.
Black/African American women with breast cancer have disproportionately higher mortality rates and report experiencing a lower quality of life during survivorship compared to non-Hispanic white women. Despite support for the integration of peer navigation in cancer care and survivorship to address these inequities, Black/African American women often have limited access to culturally tailored peer navigation programs. We aimed to investigate the unique needs and strengths of Black/African American women with breast cancer and survivors to inform the development of a culturally tailored peer navigation program for Black/African American women.
We developed a community-university partnership based on best practices of community-based participatory research. The partnership conducted storytelling sessions with Black/African American survivors of breast cancer and their caregivers and key informant interviews with community partners and applied thematic analysis.
A total of 14 survivors and 4 caretakers took part in storytelling sessions and 6 community partners took part in key informant interviews. Themes from the storytelling sessions included spirituality, social support, information seeking, and relationship with care team. These themes were then incorporated into developing the theoretical basis, structure, and content of the BLACC peer navigation program. The key informant interviews were instrumental in building new partnerships to support the implementation of the peer navigation program.
The community-university partnership successfully identified the unique needs and strengths of Black/African American women who either had breast cancer or were survivors of breast cancer, identified valuable resources, and secured buy-in from community leaders to develop a comprehensive peer navigation program.
与非西班牙裔白人女性相比，患有乳腺癌的黑人/非裔美国女性死亡率高得不成比例，并且在癌症康复期间生活质量较低。尽管支持在癌症治疗和康复过程中引入同伴导航服务以解决这些不平等问题，但黑人/非裔美国女性往往难以获得符合其文化背景的同伴导航项目。我们旨在调查患有乳腺癌的黑人/非裔美国女性及其幸存者的独特需求和优势，以为开发针对黑人/非裔美国女性的符合其文化背景的同伴导航项目提供参考。
我们基于社区参与式研究的最佳实践建立了社区与大学的合作伙伴关系。该合作伙伴关系组织了患有乳腺癌的黑人/非裔美国女性幸存者及其护理人员参与故事分享会，并对社区合作伙伴进行了关键信息访谈，同时应用了主题分析法。
共有14名幸存者和4名护理人员参加了故事分享会，6名社区合作伙伴参加了关键信息访谈。故事分享会的主题包括灵性、社会支持、信息寻求以及与护理团队的关系。这些主题随后被纳入到BLACC同伴导航项目的理论基础、结构和内容的开发中。关键信息访谈有助于建立新的合作伙伴关系，以支持同伴导航项目的实施。
社区与大学的合作伙伴关系成功识别了患有乳腺癌或为乳腺癌幸存者的黑人/非裔美国女性的独特需求和优势，确定了宝贵资源，并获得了社区领袖对开发全面同伴导航项目的支持。
