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文化、身份、力量和精神:一项理解非裔美国女性乳腺癌幸存者体验的定性研究及其对干预措施发展的建议。

Culture, identity, strength and spirituality: A qualitative study to understand experiences of African American women breast cancer survivors and recommendations for intervention development.

机构信息

Joseph J. Zilber School of Public Health, University of Wisconsin Milwaukee, Milwaukee, Wisconsin.

Professor Emerita, College of Nursing, University of Wisconsin Milwaukee, Milwaukee, Wisconsin.

出版信息

Eur J Cancer Care (Engl). 2019 May;28(3):e13013. doi: 10.1111/ecc.13013. Epub 2019 Feb 13.

Abstract

OBJECTIVE

Despite advancements in cancer treatment, racial disparities in breast cancer survival persist, with African American women experiencing lower survival rates and poorer quality of life than non-Hispanic White women. Using a social cognitive model of restorative well-being as a framework, this qualitative study sought: (a) to examine strength- and culture-related factors associated with African American female breast cancer survivors' cancer coping and post-treatment experiences and (b) to make recommendations for culturally sensitive intervention.

METHODS

Eight focus groups occurred with a total of 40 local African American breast cancer survivors. Focus groups were audiotaped and transcribed verbatim. Framework analyses were used to identify themes. NVivo qualitative analysis software-managed data.

RESULTS

Two major themes emerged from the focus group discussions: (a) God enables breast cancer survivorship and works every day in our lives and (b) the healthiest thing about us is that we are strong African American women. Recommendations for intervention planning and implementation were made towards intervention structure, content development and language framing in a local context.

CONCLUSION

Findings suggest a need for community-based participatory survivorship interventions that are culturally and spiritually consonant and peer-based. Such interventions may respond to the cancer-related and personal needs of the target population.

摘要

目的

尽管癌症治疗取得了进步,但乳腺癌生存方面仍存在种族差异,非西班牙裔白种女性的生存率和生活质量均低于非裔美国女性。本研究采用恢复性健康的社会认知模型作为框架,旨在:(a) 探讨与非裔美国女性乳腺癌幸存者的癌症应对和治疗后经历相关的优势和文化因素;(b) 提出具有文化敏感性的干预建议。

方法

共进行了 8 次焦点小组,参与者为 40 名当地非裔美国乳腺癌幸存者。对焦点小组进行了录音和逐字转录。采用框架分析法识别主题。使用 NVivo 定性分析软件管理数据。

结果

焦点小组讨论中出现了两个主要主题:(a) 上帝使乳腺癌患者得以幸存,并在我们的日常生活中每天都在发挥作用;(b) 我们最健康的地方在于我们是非裔美国女性,非常坚强。研究提出了针对干预结构、内容开发和当地语言框架的干预规划和实施建议。

结论

研究结果表明,需要在社区层面开展基于文化和精神且以同伴为基础的参与式生存干预措施。此类干预措施可能能够满足目标人群的癌症相关和个人需求。

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