Jeanes Yvonne, Orlandi Lidia, Muhammad Humayun, Reeves Sue
School of Life and Health Sciences, University of Roehampton, London, UK.
J Hum Nutr Diet. 2025 Feb;38(1):e70014. doi: 10.1111/jhn.70014.
A gluten-free (GF) diet, the only treatment for people living with coeliac disease (CD), is challenging, and international guidelines highlight the valuable role of healthcare professionals in enabling self-management. The study aimed to explore the acceptability of telephone and online video consultations for adults with CD.
A cross-sectional study consisting of an online and paper survey was promoted to adults with CD.
Data from 496 adults with CD (87% female, 96% White) are presented, and 44% were adhering to the GF diet. Over half (58%) were very confident in understanding food labels from supermarkets, whereas only 38% were very confident when shopping online. The largest proportion of patients preferred in-person healthcare appointments for CD (44%), with 20% reporting no preference and 21% preferring telephone appointments. Only 15% preferred online video consultations; of these, 97% were confident with online technology. A higher proportion of patients from a lower household income requested 'in-person' appointments compared with those with a higher income (65% vs. 45% (p < 0.01)). Likewise, 58% of patients without a degree qualification requested 'in-person' appointments compared with 45% of degree-educated patients (p = 0.027).
We highlight a significant proportion of adults with CD prefer an in-person appointment. The paper survey enabled the views of a broader range of digitally confident patients to contribute to the study. With a global shift towards telemedicine and online resources, access and digital literacy is an important consideration for equitable healthcare to optimize patient self-management of the GF diet.
无麸质(GF)饮食是乳糜泻(CD)患者的唯一治疗方法,具有挑战性,国际指南强调了医疗保健专业人员在促进自我管理方面的重要作用。本研究旨在探讨电话和在线视频咨询对成年CD患者的可接受性。
对成年CD患者开展了一项由在线调查和纸质调查组成的横断面研究。
呈现了496名成年CD患者(87%为女性,96%为白人)的数据,44%的患者坚持无麸质饮食。超过一半(58%)的患者对理解超市食品标签非常有信心,而在网上购物时只有38%的患者非常有信心。最大比例的患者更喜欢亲自进行CD医疗预约(44%),20%的患者表示无偏好,21%的患者更喜欢电话预约。只有15%的患者更喜欢在线视频咨询;其中,97%的患者对在线技术有信心。与高收入家庭的患者相比,低收入家庭的患者中要求“亲自”预约的比例更高(65%对45%(p<0.01))。同样,没有学位资格的患者中有58%要求“亲自”预约,而有学位的患者中这一比例为45%(p=0.027)。
我们强调相当比例的成年CD患者更喜欢亲自预约。纸质调查使更多对数字技术有信心的患者的观点能够为研究做出贡献。随着全球向远程医疗和在线资源的转变,获取途径和数字素养是实现公平医疗以优化患者对无麸质饮食的自我管理的重要考虑因素。