Suppr超能文献

实施自闭症和注意力缺陷多动障碍的国际功能、残疾和健康分类核心集:一项多方法可行性研究。

Operationalizing the ICF Core Sets for Autism and ADHD: A Multiple-Methods Feasibility Study.

作者信息

Alehagen Lovisa, Hasslinger John, Wessman Elina, Black Melissa, Lundin Remnélius Karl, Helander Johan, Zander Eric, Bölte Sven

机构信息

Center of Neurodevelopmental Disorders (KIND), Department of Women's and Children's Health, Centre for Psychiatry Research , Karolinska Institutet & Region Stockholm, Stockholm, Sweden.

Child and Adolescent Psychiatry, Stockholm Health Care Services, Region Stockholm, Stockholm, Sweden.

出版信息

J Autism Dev Disord. 2025 Jan 30. doi: 10.1007/s10803-024-06717-4.

Abstract

The International Classification of Functioning, Disability and Health (ICF) is the World Health Organization's (WHO) standard for assessing individual functioning. Over the last decade, the ICF has been made more accessible for autism and ADHD through the development and validation of tailored shorter ICF versions for these diagnoses, ICF Core Sets. To further enhance their applicability in research and practice, these Core Sets have been operationalized and implemented on an online platform, the ICF CoreSets platform. Here, we describe the iterative development process of the CoreSets platform. This multiple-methods study examines user feedback on the operationalization of the Core Sets and the feasibility of the CoreSets platform as a functional assessment for autism and ADHD. We collected a total of 678 assessments from the CoreSets platform. Individuals diagnosed with autism and/or ADHD, their relatives, participants from the general population, and professionals completed and provided feedback on the usability of the CoreSets platform. Qualitative feedback via interviews and focus groups were also collected. Qualitative data were analysed via content analysis, while quantitative data were examined using univariate and descriptive techniques. Findings show that the ICF CoreSets platform is feasible and user-friendly, but areas for improvement were also indicated, leading to additional refinement of the operationalization and platform. The operationalization of the ICF Core Sets and their implementation in the CoreSets platform appears adequate for use in research and practice, particularly after revisions indicated by future users, and is now ready for psychometric standardization.

摘要

《国际功能、残疾和健康分类》(ICF)是世界卫生组织(WHO)用于评估个体功能的标准。在过去十年中,通过为自闭症和注意力缺陷多动障碍开发并验证量身定制的更简短ICF版本(即ICF核心集),ICF在这两种病症的应用中变得更加便捷。为进一步提高其在研究和实践中的适用性,这些核心集已在一个在线平台——ICF核心集平台上实现了可操作化并得以应用。在此,我们描述了核心集平台的迭代开发过程。这项多方法研究考察了用户对核心集可操作化的反馈,以及核心集平台作为自闭症和注意力缺陷多动障碍功能评估工具的可行性。我们从核心集平台共收集了678份评估。被诊断患有自闭症和/或注意力缺陷多动障碍的个体、他们的亲属、普通人群参与者以及专业人员完成了对核心集平台可用性的评估并提供了反馈。我们还通过访谈和焦点小组收集了定性反馈。定性数据通过内容分析进行分析,而定量数据则使用单变量和描述性技术进行检验。研究结果表明,ICF核心集平台是可行且用户友好的,但也指出了需要改进的方面,从而促使对可操作化和平台进行进一步优化。ICF核心集的可操作化及其在核心集平台上的应用似乎足以用于研究和实践,特别是在未来用户指出需要修订之后,并且现在已准备好进行心理测量标准化。

文献AI研究员

20分钟写一篇综述,助力文献阅读效率提升50倍。

立即体验

用中文搜PubMed

大模型驱动的PubMed中文搜索引擎

马上搜索

文档翻译

学术文献翻译模型,支持多种主流文档格式。

立即体验