Kwok Gary, Levonyan-Radloff Kristine, Masterson Margaret, Ohman-Strickland Pamela, Pawlish Karen S, Burger Stasia S, Paddock Lisa E, Palermo Tonya M, Bouchard Elizabeth G, Manne Sharon L, Devine Katie A
Department of Pediatrics, Rutgers Cancer Institute, New Brunswick, NJ, United States.
Biostatistics and Epidemiology, Rutgers School of Public Health, Piscataway, NJ, United States.
J Pediatr Psychol. 2025 Aug 1;50(8):798-810. doi: 10.1093/jpepsy/jsaf004.
Although childhood cancer survivors require lifelong "risk-based" follow-up care, most adult survivors do not receive such care, and many are lost during the transition from pediatric to adult follow-up care. The goal of this study was to evaluate the feasibility and acceptability of the "Managing Your Health" self-management and peer mentoring intervention to improve transition readiness and self-management skills among young adult survivors of childhood cancer.
Survivors of childhood cancer ages 18-25 years were randomized 1:1 to the Managing Your Health intervention (six video/phone calls with a peer mentor, another young adult survivor, and five online educational modules) or usual care. Feasibility was measured through enrollment rates, retention rates, and engagement and satisfaction with the intervention. Participants completed measures of transition readiness, self-efficacy, and perceived support at baseline and 2-, 6-, and 12-months post-enrollment.
A total of 50 participants (Mage = 21.1 years; 60% male) enrolled (32% of the total pool was contacted; 76% of those were screened; 94% of those screening eligible enrolled). Twenty-two (88%) of the 25 intervention participants completed the peer mentor calls. On average, participants completed 96% of the online modules, often closely timed to peer mentor calls. Participants indicated high satisfaction and acceptability of the intervention and suggested some improvements to the online modules.
Managing Your Health was feasible and acceptable to young adult survivors and mentors. Peer mentors appeared to serve as supportive accountability agents encouraging engagement with the online modules. Additional refinements will be made to the intervention prior to efficacy testing.
尽管儿童癌症幸存者需要终身的“基于风险”的后续护理，但大多数成年幸存者并未接受此类护理，许多人在从儿科向成人后续护理的过渡过程中失去联系。本研究的目的是评估“管理你的健康”自我管理和同伴指导干预措施在提高儿童癌症青年成年幸存者的过渡准备度和自我管理技能方面的可行性和可接受性。
将18 - 25岁的儿童癌症幸存者按1:1随机分为“管理你的健康”干预组（与同伴导师、另一名青年成年幸存者进行六次视频/电话沟通，以及五个在线教育模块）或常规护理组。通过招募率、留存率以及对干预措施的参与度和满意度来衡量可行性。参与者在基线以及入组后2个月、6个月和12个月完成过渡准备度、自我效能感和感知支持的测量。
共有50名参与者（平均年龄 = 21.1岁；60%为男性）入组（占总联系人群的32%；其中76%接受了筛查；筛查合格者中有94%入组）。25名干预组参与者中有22名（88%）完成了与同伴导师的沟通。参与者平均完成了96%的在线模块，时间安排通常与同伴导师沟通紧密相关。参与者对干预措施表示高度满意和可接受，并对在线模块提出了一些改进建议。
“管理你的健康”对青年成年幸存者和导师来说是可行且可接受的。同伴导师似乎起到了支持性责任代理人的作用，鼓励参与者参与在线模块。在进行疗效测试之前，将对干预措施进行进一步完善。
