Amhaz Haneen, Chen Sally Xuanping, Elchehimi Amanee, Han Kylin Jialin, Gil Jade Morales, Yao Lu, Vidler Marianne, Berry-Einarson Kathryn, Dewar Kathryn, Tuason May, Prestley Nicole, Doan Quynh, van Rooij Tibor, Costa Tina, Ogilvie Gina, Payne Beth A
Women's Health Research Institute, Vancouver, BC, Canada.
BC Children's Hospital Research Institute, Vancouver, BC, Canada.
JMIR Hum Factors. 2025 Jan 30;12:e60825. doi: 10.2196/60825.
Digital health innovations provide an opportunity to improve access to care, information, and quality of care during the perinatal period, a critical period of health for mothers and infants. However, research to develop perinatal digital health solutions needs to be informed by actual patient and health system needs in order to optimize implementation, adoption, and sustainability.
Our aim was to co-design a research agenda with defined research priorities that reflected health system realities and patient needs.
Co-design of the research agenda involved a series of activities: (1) review of the provincial Digital Health Strategy and Maternity Services Strategy to identify relevant health system priorities, (2) anonymous survey targeting perinatal care providers to ascertain their current use and perceived need for digital tools, (3) engagement meetings using human-centered design methods with multilingual patients who are currently or recently pregnant to understand their health experiences and needs, and (4) a workshop that brought together patients and other project partners to prioritize identified challenges and opportunities for perinatal digital health in a set of research questions. These questions were grouped into themes using a deductive analysis approach starting with current BC Digital Health Strategy guiding principles.
Between September 15, 2022, and August 31, 2023, we engaged with more than 150 perinatal health care providers, researchers, and health system stakeholders and a patient advisory group of women who were recently pregnant to understand the perceived needs and priorities for digital innovation in perinatal care in British Columbia, Canada. As a combined group, partners were able to define 12 priority research questions in 3 themes. The themes prioritized are digital innovation for (1) patient autonomy and support, (2) standardized educational resources for patients and providers, and (3) improved access to health information.
Our research agenda highlights the needs for perinatal digital health research to support improvements in the quality of care in British Columbia. By using a human-centered design approach, we were able to co-design research priorities that are meaningful to patients and health system stakeholders. The identified priority research questions are merely a stepping stone in the research process and now need to be actioned by research teams and health systems partners.
数字健康创新为改善围产期（母婴健康的关键时期）的医疗服务可及性、信息获取及医疗质量提供了契机。然而，围产期数字健康解决方案的研发需要依据实际患者和卫生系统的需求，以优化其实施、采用及可持续性。
我们的目标是共同设计一个研究议程，确定反映卫生系统实际情况和患者需求的研究重点。
研究议程的共同设计涉及一系列活动：（1）审查省级数字健康战略和孕产妇服务战略，以确定相关的卫生系统重点；（2）针对围产期护理提供者进行匿名调查，以确定他们当前对数字工具的使用情况和感知需求；（3）采用以人为本的设计方法，与目前或近期怀孕的多语言患者举行参与会议，以了解他们的健康经历和需求；（4）举办一次研讨会，将患者和其他项目合作伙伴聚集在一起，在一系列研究问题中确定围产期数字健康已识别的挑战和机遇的优先次序。这些问题采用演绎分析方法，从当前不列颠哥伦比亚省数字健康战略的指导原则开始进行主题分组。
在2022年9月15日至2023年8月31日期间，我们与150多名围产期医疗保健提供者、研究人员和卫生系统利益相关者以及一个近期怀孕女性患者咨询小组进行了接触，以了解加拿大不列颠哥伦比亚省围产期护理中数字创新的感知需求和优先事项。作为一个联合小组，合作伙伴能够在3个主题中确定12个优先研究问题。优先考虑的主题是数字创新，用于（1）患者自主权和支持；（2）为患者和提供者提供标准化教育资源；（3）改善健康信息获取。
我们的研究议程突出了围产期数字健康研究的需求，以支持不列颠哥伦比亚省医疗质量的改善。通过采用以人为本的设计方法，我们能够共同设计对患者和卫生系统利益相关者有意义的研究重点。已确定的优先研究问题仅仅是研究过程中的一块垫脚石，现在需要研究团队和卫生系统合作伙伴采取行动。
