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离家万里:利用便携式磁共振成像管理实地研究中的偶然发现

Far from Home: Managing Incidental Findings in Field Research with Portable MRI.

作者信息

Wolf Susan M, Illes Judy

机构信息

UNIVERSITY OF MINNESOTA, MINNEAPOLIS, MN, USA.

UNIVERSITY OF BRITISH COLUMBIA, VANCOUVER, BC, CANADA.

出版信息

J Law Med Ethics. 2024;52(4):805-815. doi: 10.1017/jme.2024.169. Epub 2025 Jan 31.

Abstract

Portable MRI for neuroimaging research in remote field settings can reach populations previously excluded from research, including communities underrepresented in current brain neuroscience databases and marginalized in health care. However, research conducted far from a medical institution and potentially in populations facing barriers to health care access raises the question of how to manage incidental findings (IFs) that may warrant clinical workup. Researchers should not withhold information about IFs from historically excluded and underserved population when members consent to receive it, and instead should facilitate access to information and a pathway to clinical care.

摘要

用于偏远地区神经成像研究的便携式磁共振成像(MRI)设备能够触及以往被排除在研究之外的人群,包括当前脑科学数据库中代表性不足以及在医疗保健方面处于边缘地位的社区。然而,在远离医疗机构且可能是面临医疗保健获取障碍的人群中开展研究,引发了如何处理可能需要临床检查的偶发发现(IFs)这一问题。当历史上被排除在外和服务不足的人群成员同意接收时,研究人员不应隐瞒有关偶发发现的信息,而应促进信息获取以及通往临床护理的途径。

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