Suppr超能文献

跨越老龄化研究与健康公平鸿沟:走向研究正义与参与的交叉框架。

Traversing the Aging Research and Health Equity Divide: Toward Intersectional Frameworks of Research Justice and Participation.

机构信息

University of Wisconsin-Madison Center for Health Disparities Research, Madison, WI, USA.

University of Wisconsin-Madison School of Nursing, Madison, WI, USA.

出版信息

Gerontologist. 2022 May 26;62(5):711-720. doi: 10.1093/geront/gnab107.

Abstract

Meaningful reductions in racial and ethnic inequities in chronic diseases of aging remain unlikely without major advancements in the inclusion of minoritized populations in aging research. While sparse, studies investigating research participation disparities have predominantly focused on individual-level factors and behavioral change, overlooking the influence of study design, structural factors, and social determinants of health on participation. This is also reflected in conventional practices that consistently fail to address established participation barriers, such as study requirements that impose financial, transportation, linguistic, and/or logistical barriers that disproportionately burden participants belonging to minoritized populations. These shortcomings not only risk exacerbating distrust toward research and researchers, but also introduce significant selection biases, diminishing our ability to detect differential mechanisms of risk, resilience, and response to interventions across subpopulations. This forum article examines the intersecting factors that drive both health inequities in aging and disparate participation in aging research among minoritized populations. Using an intersectional, social justice, and emancipatory lens, we characterize the role of social determinants, historical contexts, and contemporaneous structures in shaping research accessibility and inclusion. We also introduce frameworks to accelerate transformative theoretical approaches to fostering equitable inclusion of minoritized populations in aging research.

摘要

如果不能在将少数族裔纳入老龄化研究方面取得重大进展,要想大幅减少老龄化相关慢性病方面的种族和族裔不平等问题,仍然不太可能。尽管研究很少,但调查研究参与差异的研究主要集中在个人层面的因素和行为改变上,而忽略了研究设计、结构性因素和健康的社会决定因素对参与的影响。这也反映在传统做法中,这些做法始终未能解决既定的参与障碍,例如研究要求造成经济、交通、语言和/或后勤方面的障碍,这些障碍不成比例地给属于少数族裔的参与者带来负担。这些缺陷不仅有可能加剧人们对研究和研究人员的不信任,而且还会引入严重的选择偏差,从而降低我们检测不同亚人群中风险、适应力和对干预措施反应的不同机制的能力。本文从交叉的角度审视了导致老龄化健康不平等和少数族裔参与老龄化研究差异的因素。我们采用交叉、社会公正和解放的视角,描述社会决定因素、历史背景和当代结构在塑造研究可及性和包容性方面的作用。我们还介绍了一些框架,以加速促进少数族裔在老龄化研究中公平参与的变革性理论方法。

相似文献

2
Racial Health Equity and Social Needs Interventions: A Review of a Scoping Review.
JAMA Netw Open. 2023 Jan 3;6(1):e2250654. doi: 10.1001/jamanetworkopen.2022.50654.
3
A call to action for disability and rehabilitation research using a DisCrit and Disability Justice framework.
Disabil Rehabil. 2024 Jul;46(14):3189-3195. doi: 10.1080/09638288.2023.2242780. Epub 2023 Aug 22.
4
Equity and justice in health.
Nurs Outlook. 2024 Jul-Aug;72(4):102178. doi: 10.1016/j.outlook.2024.102178. Epub 2024 May 16.
7
Consumer Health Informatics for Racial and Ethnic Minoritized Communities: Minor Progress, Major Opportunities.
Yearb Med Inform. 2022 Aug;31(1):167-172. doi: 10.1055/s-0042-1742520. Epub 2022 Dec 4.
8
Action against inequalities: a synthesis of social justice & equity, diversity, inclusion frameworks.
Int J Equity Health. 2024 May 23;23(1):106. doi: 10.1186/s12939-024-02141-3.
9
Social Justice as a Tool to Eliminate Inequities in Kidney Disease.
Semin Nephrol. 2021 May;41(3):203-210. doi: 10.1016/j.semnephrol.2021.05.001.

引用本文的文献

1
Guided by the community: Insights on recruitment science from the African Americans Fighting Alzheimer's in Midlife (AA-FAIM) Project.
Alzheimers Dement Behav Socioecon Aging. 2025 Jun;1(2). doi: 10.1002/bsa3.70008. Epub 2025 Apr 6.
6
Community-engaged efforts to increase retention of Black American online registry participants.
Alzheimers Dement (N Y). 2025 May 8;11(2):e70046. doi: 10.1002/trc2.70046. eCollection 2025 Apr-Jun.
7
Cultural Safety in Clinical Research: A Conceptual Overview and Call to Action.
Innov Aging. 2025 Feb 13;9(4):igaf015. doi: 10.1093/geroni/igaf015. eCollection 2025.
9
Methods for community-engaged data collection and analysis in implementation research.
Implement Sci Commun. 2025 Apr 7;6(1):38. doi: 10.1186/s43058-025-00722-z.

本文引用的文献

1
Aging and COVID-19 in Minority Populations: a Perfect Storm.
Curr Epidemiol Rep. 2021;8(2):63-71. doi: 10.1007/s40471-021-00267-4. Epub 2021 Mar 16.
2
Amyloid PET Imaging in Self-Identified Non-Hispanic Black Participants of the Anti-Amyloid in Asymptomatic Alzheimer's Disease (A4) Study.
Neurology. 2021 Mar 16;96(11):e1491-e1500. doi: 10.1212/WNL.0000000000011599. Epub 2021 Feb 10.
3
The Urgency of Justice in Research: Beyond COVID-19.
Trends Mol Med. 2021 Feb;27(2):97-100. doi: 10.1016/j.molmed.2020.11.004. Epub 2020 Nov 17.
4
Earning the Trust of African American Communities to Increase Representation in Dementia Research.
Ethn Dis. 2020 Nov 19;30(Suppl 2):719-734. doi: 10.18865/ed.30.S2.719. eCollection 2020.
5
Using Mistrust, Distrust, and Low Trust Precisely in Medical Care and Medical Research Advances Health Equity.
Am J Prev Med. 2021 Mar;60(3):442-445. doi: 10.1016/j.amepre.2020.08.019. Epub 2020 Nov 15.
6
Perspective on the "African American participation in Alzheimer disease research: Effective strategies" workshop, 2018.
Alzheimers Dement. 2020 Dec;16(12):1734-1744. doi: 10.1002/alz.12160. Epub 2020 Aug 17.
7
Recruitment and retention of underrepresented populations in Alzheimer's disease research: A systematic review.
Alzheimers Dement (N Y). 2019 Nov 19;5:751-770. doi: 10.1016/j.trci.2019.09.018. eCollection 2019.
8
Facilitators of research registry enrollment and potential variation by race and gender.
J Clin Transl Sci. 2018 Nov 27;2(4):234-238. doi: 10.1017/cts.2018.326. eCollection 2018 Aug.
9
Association between enrollment factors and incident cognitive impairment in Blacks and Whites: Data from the Alzheimer's Disease Center.
Alzheimers Dement. 2019 Dec;15(12):1533-1545. doi: 10.1016/j.jalz.2019.07.015. Epub 2019 Oct 7.
10
Towards a More Inclusive and Dynamic Understanding of Medical Mistrust Informed by Science.
Behav Med. 2019 Apr-Jun;45(2):79-85. doi: 10.1080/08964289.2019.1619511.

文献AI研究员

20分钟写一篇综述,助力文献阅读效率提升50倍。

立即体验

用中文搜PubMed

大模型驱动的PubMed中文搜索引擎

马上搜索

文档翻译

学术文献翻译模型,支持多种主流文档格式。

立即体验