Taranu Mihaela, Sebio-García Raquel, Milisenda José C, Alejaldre Aida, Pastor Xavier, Laxe Sarah
Physical Medicine and Rehabilitation Department, Hospital Germans Trias I Pujol, Badalona, Barcelona, Spain; WHOFIC Academic Collaborating Center- Univesitat de Barcelona, Barcelona, Spain.
Physical Medicine and Rehabilitation Department, Hospital Germans Trias I Pujol, Badalona, Barcelona, Spain; August Pi i Sunyer Biomedical Research Institute (IDIBAPS) University of Barcelona, Barcelona, Spain.
J Rehabil Med. 2025 Jan 31;57:jrm40327. doi: 10.2340/jrm.v57.40327.
Functioning is the reason to be of rehabilitation as it is essential to the lives of people who suffer from a disease. The International Classification of Functioning, Disability and Health (ICF) can help in designing a functioning profile of a patient, identifying needs for rehabilitation plans and measuring the results of an intervention.
To identify the outcome measurement instruments reported in clinical studies in muscular dystrophies (MDs) and provide an ICF content analysis.
A systematic literature review was conducted until October 2022, using Medline, PubMed, and Scopus databases. Papers assessing outcomes related to functioning in patients with MDs were included.
A total of 116 papers were included and all identified outcome measures were linked to the ICF. Inter-researcher agreement for the linking process was 0.82. The analysed instruments focused mainly on aspects of body functions, followed by activities and participation. General scales were more comprehensive than specific.
The application of ICF in this research enhances the understanding of functioning of patients with MDs and the need to develop more specific but comprehensive scales tailored to the needs of MD patients, and can guide clinicians in a assessing patients through a biopsychosocial perspective.
功能是康复存在的理由，因为它对患有疾病的人的生活至关重要。《国际功能、残疾和健康分类》（ICF）有助于勾勒患者的功能概况，确定康复计划的需求并衡量干预结果。
识别肌肉营养不良症（MDs）临床研究中报告的结局测量工具，并进行ICF内容分析。
截至2022年10月进行了一项系统的文献综述，使用了Medline、PubMed和Scopus数据库。纳入评估与MDs患者功能相关结局的论文。
共纳入116篇论文，所有确定的结局测量指标均与ICF相关。链接过程的研究者间一致性为0.82。分析的工具主要侧重于身体功能方面，其次是活动和参与。通用量表比特定量表更全面。
ICF在本研究中的应用增强了对MDs患者功能的理解，以及开发更符合MD患者需求的更具体但全面的量表的必要性，并可指导临床医生从生物心理社会角度评估患者。
