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探寻自我智慧:一项探索“掌控”干预措施在中风康复中作用的定性研究。

Coming to my own wisdom: A qualitative study exploring the role of the Take Charge intervention in stroke recovery.

作者信息

Fu Vivian, Fernando Kathryn Mary, Bright Felicity, Riley Judith, McPherson Kathryn, McNaughton Harry

机构信息

Medical Research Institute of New Zealand, Wellington, New Zealand.

Stroke Clinical Trials Group, University of Calgary, Calgary, Alberta, Canada.

出版信息

Clin Rehabil. 2025 Mar;39(3):377-387. doi: 10.1177/02692155241310770. Epub 2025 Feb 2.

DOI:10.1177/02692155241310770
PMID:39895051
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11927028/
Abstract

ObjectiveThe Take Charge intervention, delivered early after hospital discharge following acute stroke, is effective at improving 12-month health status, independence and advanced activities of daily living. This study aims to provide a deeper understanding of the experiences of receiving Take Charge.DesignThis was a qualitative study nested within a large randomised control trial, the Taking Charge After Stroke (TaCAS) study. Data were analysed using thematic analysis, and we describe our findings using interpretive description.ParticipantsPeople with stroke aged over 18 years, who were participants in the TaCAS study conducted in Aotearoa New Zealand.InterventionTake Charge, a person-centred conversation delivered face-to-face, designed to explore a person's identity and priorities, conducted by a trained facilitator and guided by a workbook.ResultsWe interviewed nine participants, three from each of the three arms of the TaCAS trial - each would have received one, two, or zero Take Charge sessions (the control group). The overall theme of 'Doing things my way/coming to know my own wisdom and expertise' was enabled by 'being listened to and feeling heard' and 'focusing on the goals which were important to me', both strongly expressed by people who received the Take Charge intervention, and hindered by 'medical paternalism' and 'loss of sense of self/"not me"' most commonly expressed by people in the control arm.ConclusionsThe Take Charge intervention empowers people with stroke by enhancing intrinsic motivation. A trusting, therapeutic relationship and non-judgemental facilitation are essential to ensure that the person feels heard.

摘要

目的

“掌控自我”干预措施在急性中风出院后早期实施,对改善12个月的健康状况、独立性和高级日常生活活动有效。本研究旨在更深入地了解接受“掌控自我”干预的体验。

设计

这是一项嵌套在大型随机对照试验“中风后掌控自我”(TaCAS)研究中的定性研究。采用主题分析法对数据进行分析,并使用解释性描述来阐述研究结果。

参与者

年龄超过18岁的中风患者,他们是在新西兰奥特亚罗瓦进行的TaCAS研究的参与者。

干预措施

“掌控自我”,这是一种由经过培训的促进者以面对面方式进行的以个人为中心的对话,旨在探索个人的身份和优先事项,并以工作手册为指导。

结果

我们采访了9名参与者,TaCAS试验三个组各有3名——每组分别接受了1次、2次或0次“掌控自我”干预课程(对照组)。“按自己的方式做事/了解自己的智慧和专业知识”这一总体主题因“被倾听并感到被理解”和“关注对我重要的目标”而得以实现,这两点在接受“掌控自我”干预的人群中强烈体现,而“医疗家长作风”和“自我意识丧失/‘不是我自己了’”则对这一主题起到阻碍作用,这两点在对照组人群中最为常见。

结论

“掌控自我”干预措施通过增强内在动力赋予中风患者力量。信任、治疗性的关系以及无评判的引导对于确保患者感到被倾听至关重要。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e26b/11927028/38d62f83cdde/10.1177_02692155241310770-fig1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e26b/11927028/38d62f83cdde/10.1177_02692155241310770-fig1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e26b/11927028/38d62f83cdde/10.1177_02692155241310770-fig1.jpg

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Clin Rehabil. 2025 Mar;39(3):377-387. doi: 10.1177/02692155241310770. Epub 2025 Feb 2.
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本文引用的文献

1
'Physical well-being is our top priority': Healthcare professionals' challenges in supporting psychosocial well-being in stroke services.“身体健康是我们的首要任务”:医疗保健专业人员在中风服务中支持心理社会健康方面面临的挑战。
Health Expect. 2024 Apr;27(2):e14016. doi: 10.1111/hex.14016.
2
Psychosocial well-being after stroke in Aotearoa New Zealand: a qualitative metasynthesis.新西兰奥塔哥地区卒中后患者的心理社会健康状况:定性元分析。
Disabil Rehabil. 2024 May;46(10):2000-2013. doi: 10.1080/09638288.2023.2212178. Epub 2023 May 17.
3
A cohesive, person-centric evidence-based model for successful rehabilitation after stroke and other disabling conditions.
一种用于中风及其他致残性疾病后成功康复的、以患者为中心的、基于证据的连贯模型。
Clin Rehabil. 2023 Jul;37(7):975-985. doi: 10.1177/02692155221145433. Epub 2022 Dec 20.
4
What is important in supporting self-management in community stroke rehabilitation? A Q methodology study.在社区脑卒中康复中支持自我管理的重点是什么?一项 Q 方法学研究。
Disabil Rehabil. 2023 Jul;45(14):2307-2315. doi: 10.1080/09638288.2022.2087766. Epub 2022 Jun 25.
5
Taking Charge after Stroke: A randomized controlled trial of a person-centered, self-directed rehabilitation intervention.脑卒中后管理:一项以患者为中心、自我导向的康复干预的随机对照试验。
Int J Stroke. 2020 Dec;15(9):954-964. doi: 10.1177/1747493020915144. Epub 2020 Apr 15.
6
Person centered care in neurorehabilitation: a secondary analysis.神经康复中的以患者为中心的护理:二次分析。
Disabil Rehabil. 2020 Aug;42(16):2334-2343. doi: 10.1080/09638288.2018.1561952. Epub 2019 Jan 29.
7
The Taking Charge After Stroke (TaCAS) study protocol: a multicentre, investigator-blinded, randomised controlled trial comparing the effect of a single Take Charge session, two Take Charge sessions and control intervention on health-related quality of life 12 months after stroke for non-Māori, non-Pacific adult New Zealanders discharged to community living.中风后自主管理(TaCAS)研究方案:一项多中心、研究者设盲、随机对照试验,比较一次自主管理课程、两次自主管理课程及对照干预对非毛利、非太平洋岛民的成年新西兰人中风后12个月社区生活时健康相关生活质量的影响。
BMJ Open. 2017 Jun 1;7(5):e016512. doi: 10.1136/bmjopen-2017-016512.
8
Self management programmes for quality of life in people with stroke.中风患者生活质量的自我管理项目。
Cochrane Database Syst Rev. 2016 Aug 22;2016(8):CD010442. doi: 10.1002/14651858.CD010442.pub2.
9
Sample Size in Qualitative Interview Studies: Guided by Information Power.定性访谈研究中的样本量:以信息力为导向
Qual Health Res. 2016 Nov;26(13):1753-1760. doi: 10.1177/1049732315617444. Epub 2016 Jul 10.
10
Taking charge after stroke: promoting self-directed rehabilitation to improve quality of life--a randomized controlled trial.脑卒中后管理:促进自我导向康复以提高生活质量——一项随机对照试验。
Clin Rehabil. 2012 Jun;26(6):493-501. doi: 10.1177/0269215511426017. Epub 2011 Nov 15.