Lengel Gregory J, Ammerman Brooke A, Bell Kerri-Anne, Washburn Jason J
Department of Psychology & Neuroscience, Drake University, Des Moines, IA.
Department of Psychology, University of Notre Dame, Notre Dame, IN.
Qual Res Med Healthc. 2025 Jan 23;8(Suppl 1):12631. doi: 10.4081/qrmh.2024.12631. eCollection 2024 Sep 9.
Nonsuicidal self-injury disorder (NSSI-D) is presently a condition for further study in the Diagnostic & Statistical Manual of Mental Disorders (DSM-5-TR) (American Psychiatric Association, 2022). While previous studies focused on NSSI-D through the lens of experts, there is a shortage of research that explores the potential impact of NSSI-D from the perspective of those most directly affected - individuals with NSSI lived experience. The present study aimed to expand this limited literature and provide a more enhanced and nuanced understanding of the potential implications and consequences of NSSI-D from lived experience viewpoints. Adults with lifetime NSSI history (N = 38) completed a semi-structured interview that surveyed perspectives on NSSI-D, including the meaning of officially recognizing NSSI-D, potential impacts of receiving an NSSI-D diagnosis, and the impact of NSSI-D on one's decision to speak with a clinician. Results from our thematic analysis of the interview data suggested opinions about NSSI-D and its potential impact were generally positive (e.g., increased awareness, understanding, and validation, increased comfort with disclosing NSSI behavior, positive impacts on treatment, and improved functioning). Participants also highlighted potential concerns about the potential consequences of NSSI-D (e.g., negative self-perception, increased stigma, and concerns about the necessity and utility of NSSI-D), and some expressed neutral/indifferent opinions about NSSI-D. Overall, results provide valuable insights regarding potential implications and consequences of official recognition and diagnosis of NSSI-D and have relevant implications for client-clinician interactions. Results also highlight the importance and value of amplifying lived experience perspectives.
非自杀性自伤障碍（NSSI-D）目前是《精神疾病诊断与统计手册》（DSM-5-TR）（美国精神病学协会，2022年）中有待进一步研究的一种病症。虽然以往的研究是通过专家视角来关注NSSI-D，但缺乏从受影响最直接的人群——有NSSI生活经历的个体的角度来探讨NSSI-D潜在影响的研究。本研究旨在拓展这一有限的文献，并从生活经历的角度对NSSI-D的潜在影响和后果提供更深入、更细致入微的理解。有终身NSSI病史的成年人（N = 38）完成了一项半结构化访谈，该访谈调查了对NSSI-D的看法，包括正式认可NSSI-D的意义、获得NSSI-D诊断的潜在影响，以及NSSI-D对个人与临床医生交谈决定的影响。我们对访谈数据的主题分析结果表明，关于NSSI-D及其潜在影响的看法总体上是积极的（例如，提高了认识、理解和认可，披露NSSI行为时更自在，对治疗有积极影响，以及功能改善）。参与者还强调了对NSSI-D潜在后果的潜在担忧（例如，负面的自我认知、耻辱感增加，以及对NSSI-D的必要性和实用性的担忧），一些人对NSSI-D表达了中立/冷漠的看法。总体而言，研究结果为NSSI-D的官方认可和诊断的潜在影响和后果提供了有价值的见解，并对医患互动具有相关意义。研究结果还凸显了放大生活经历视角的重要性和价值。
