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使用网络分析的基于过程的健康相关生活质量模型的实证证据。

Empirical evidence for a process-based model of health-related quality of life using network analysis.

作者信息

Stogios Nicolette, Francis Troy, Peiris Rachel G, Stanimirovic Aleksandra, Rac Valeria, Nolan Robert P

机构信息

Campbell Family Mental Health Research Institute, Centre for Addiction and Mental Health, Toronto, ON, Canada.

Cardiac eHealth, Peter Munk Cardiac Centre, University Health Network, Toronto, ON, Canada.

出版信息

Front Public Health. 2025 Jan 21;13:1522133. doi: 10.3389/fpubh.2025.1522133. eCollection 2025.

DOI:10.3389/fpubh.2025.1522133
PMID:39906293
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11790454/
Abstract

BACKGROUND

Health-related quality of life (HRQL) is the perceived impact of a medical condition on one's overall wellbeing. While contemporary assessments are structured to evaluate an individual's HRQL state, we propose a complementary process-based model, which is defined as an appraisal that evolves over time as it reflects and informs a self-regulatory process of adapting to dynamic changes in bio-psycho-social life domains. In support of this approach, we developed a novel HRQL assessment tool called the EUROIA: valation of goal-diected activities to prmote wellbeng and helth, which uses self-report data to assess the frequency with which individuals engage in a sample of goal-directed activities in pursuit of living well.

METHODS

We conducted a network analysis to evaluate the hypothesis that the EUROIA subscales would demonstrate a meaningful pattern of associations with an established HRQL measure and associated indices of psychosocial functioning and efficacy in self-managing a chronic medical condition.

RESULTS

The EUROIA is associated with established indices of HRQL in a manner that is theoretically consistent with our process-based model. Stability coefficients (i.e., betweenness, closeness, and strength) of the analysis revealed high reliability for the network.

CONCLUSION

This analysis provides support for the validation of a process-based approach to HRQL assessment, which is represented, in part, by the EUROIA. A process-based approach complements and expands conventional measures of HRQL by focusing on how a patient's capacity to engage in goal-directed activities for living well is affected by their medical condition.

摘要

背景

健康相关生活质量(HRQL)是指一种医疗状况对个人整体幸福感的感知影响。虽然当代评估旨在评估个体的HRQL状态,但我们提出了一种基于过程的互补模型,该模型被定义为一种随着时间推移而演变的评估,因为它反映并为适应生物心理社会生活领域动态变化的自我调节过程提供信息。为支持这一方法,我们开发了一种名为EUROIA的新型HRQL评估工具:评估旨在促进幸福感和健康的目标导向活动,该工具使用自我报告数据来评估个体参与一系列目标导向活动以追求美好生活的频率。

方法

我们进行了一项网络分析,以评估以下假设:EUROIA分量表将与既定的HRQL测量指标以及心理社会功能和慢性疾病自我管理效能的相关指标呈现出有意义的关联模式。

结果

EUROIA与既定的HRQL指标相关,其方式在理论上与我们基于过程的模型一致。分析的稳定性系数(即中介中心性、接近中心性和强度)显示该网络具有高可靠性。

结论

该分析为基于过程的HRQL评估方法的验证提供了支持,EUROIA部分代表了这种方法。基于过程的方法通过关注患者参与追求美好生活的目标导向活动的能力如何受到其医疗状况的影响,对传统的HRQL测量方法进行了补充和扩展。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/d7a9/11790454/9b3e76e3c303/fpubh-13-1522133-g0005.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/d7a9/11790454/3efaf61c8839/fpubh-13-1522133-g0001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/d7a9/11790454/b49e6620f139/fpubh-13-1522133-g0002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/d7a9/11790454/8d28da028440/fpubh-13-1522133-g0003.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/d7a9/11790454/4def2930a262/fpubh-13-1522133-g0004.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/d7a9/11790454/9b3e76e3c303/fpubh-13-1522133-g0005.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/d7a9/11790454/3efaf61c8839/fpubh-13-1522133-g0001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/d7a9/11790454/b49e6620f139/fpubh-13-1522133-g0002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/d7a9/11790454/8d28da028440/fpubh-13-1522133-g0003.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/d7a9/11790454/4def2930a262/fpubh-13-1522133-g0004.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/d7a9/11790454/9b3e76e3c303/fpubh-13-1522133-g0005.jpg

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本文引用的文献

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The evaluation of goal-directed activities to promote well-being and health in heart failure: EUROIA scale.旨在促进心力衰竭患者健康和福祉的目标导向活动的评估:EUROIA 量表。
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2
The EvalUation of goal-diRected activities to prOmote well-beIng and heAlth (EUROIA) scale: Psychometric evaluation with Confirmatory Factor Analysis.目标导向活动促进健康和福祉评估(EUROIA)量表:使用验证性因子分析进行心理计量学评估。
PLoS One. 2024 Mar 14;19(3):e0299854. doi: 10.1371/journal.pone.0299854. eCollection 2024.
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Reduced health-related quality of life, fatigue, anxiety and depression affect COVID-19 patients in the long-term after chronic critical illness.
慢性危重症 COVID-19 患者在长期康复后,健康相关的生活质量下降、疲劳、焦虑和抑郁。
Sci Rep. 2024 Feb 6;14(1):3016. doi: 10.1038/s41598-024-52908-5.
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The structure of well-being: a single underlying factor with genetic and environmental influences.幸福感的结构:具有遗传和环境影响的单一潜在因素。
Qual Life Res. 2023 Oct;32(10):2805-2816. doi: 10.1007/s11136-023-03437-7. Epub 2023 May 20.
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A process-based approach to health-related quality of life as a "way of living".基于过程的健康相关生活质量方法作为一种“生活方式”。
Qual Life Res. 2023 Sep;32(9):2425-2434. doi: 10.1007/s11136-023-03385-2. Epub 2023 Apr 1.
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Automated digital counselling with social network support as a novel intervention for patients with heart failure: protocol for randomised controlled trial.自动化数字咨询结合社交网络支持作为一种新型干预手段用于心力衰竭患者:随机对照试验方案。
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