为临床实践指南界定糖尿病、肥胖症、心血管疾病及慢性肾脏病患者报告的结局——指南研讨会特别工作组的观点

Defining patient-reported outcomes in diabetes, obesity, cardiovascular disease, and chronic kidney disease for clinical practice guidelines - perspectives of the taskforce of the Guideline Workshop.

作者信息

Barnard-Kelly Katharine, Battelino Tadej, Brosius Frank C, Ceriello Antonio, Cosentino Francesco, Gavin James R, Giorgino Francesco, Green Jennifer, Ji Linong, Kellerer Monika, Koob Sue, Kosiborod Mikhail, Lalic Nebojsa, Marx Nikolaus, Nedungadi Prashant, Parkin Christopher G, Rodbard Helena W, Rötzer René D, Rydén Lars, Sheu Wayne Huey-Herng, Standl Eberhard, Jeppesen Britta Tendal, Topsever Pinar, Vandvik Per Olav, Wanner Christoph, Schnell Oliver

机构信息

Southern Health NHS Foundation Trust, Southampton, UK.

Spotlight-AQ Ltd, Fareham, UK.

出版信息

Cardiovasc Diabetol. 2025 Feb 7;24(1):68. doi: 10.1186/s12933-024-02550-2.

DOI:10.1186/s12933-024-02550-2

PMID:39920737

原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11806799/

Abstract

Recent clinical practice guidelines for diabetes, obesity, cardiovascular disease (CVD) and chronic kidney disease (CKD) emphasise a holistic, person-centred approach to care. However, they do not include recommendations for the assessment of patient-reported outcomes (PROs), which would - dependent on the topic of guideline - be important for improving shared decision-making, patients' concordance with guideline recommendations, clinical outcomes and health-related quality of life (HRQoL). The Taskforce of the Guideline Workshop discussed PROs in diabetes, obesity, CVD and CKD as well as the relevance of their inclusion in clinical practice guidelines for the management of these conditions.

摘要

近期关于糖尿病、肥胖症、心血管疾病（CVD）和慢性肾脏病（CKD）的临床实践指南强调采用整体的、以患者为中心的护理方法。然而，这些指南并未纳入关于患者报告结局（PROs）评估的建议，而根据指南主题，这对于改善共同决策、患者对指南建议的依从性、临床结局以及健康相关生活质量（HRQoL）而言至关重要。指南研讨会特别工作组讨论了糖尿病、肥胖症、CVD和CKD中的PROs，以及将其纳入这些病症管理临床实践指南的相关性。