Center of Excellence for Rehabilitation Medicine, UMC Utrecht Brain Center, University Medical Center Utrecht, and De Hoogstraat Rehabilitation, Utrecht, The Netherlands.
Department of Neurology, Erasmus MC University Medical Center, Rotterdam, The Netherlands.
J Patient Rep Outcomes. 2024 Apr 26;8(1):46. doi: 10.1186/s41687-024-00724-w.
Patient Reported Outcomes Measures (PROMs) are being used increasingly to measure health problems in stroke clinical practice. However, the implementation of these PROMs in routine stroke care is still in its infancy. To understand the value of PROMs used in ischemic stroke care, we explored the patients' experience with PROMs and with the consultation at routine post-discharge follow-up after stroke.
In this prospective mixed methods study, patients with ischemic stroke completed an evaluation questionnaire about the use of PROMs and about their consultation in two Dutch hospitals. Additionally, telephone interviews were held to gain in-depth information about their experience with PROMs.
In total, 63 patients completed the evaluation questionnaire of which 10 patients were also interviewed. Most patients (82.2-96.6%) found completing the PROMs to be feasible and relevant. Half the patients (49.2-51.6%) considered the PROMs useful for the consultation and most patients (87.3-96.8%) reported the consultation as a positive experience. Completing the PROMs provided 51.6% of the patients with insight into their stroke-related problems. Almost 75% of the patients found the PROMs useful in giving the healthcare provider greater insight, and 60% reported discussing the PROM results during the consultation. Interviewed patients reported the added value of PROMs, particularly when arranging further care, in gaining a broader insight into the problems, and in ensuring all important topics were discussed during the consultation.
Completing PROMs appears to be feasible for patients with stroke attending post-discharge consultation; the vast majority of patients experienced added value for themselves or the healthcare provider. We recommend that healthcare providers discuss the PROM results with their patients to improve the value of PROMs for the patient. This could also improve the willingness to complete PROMs in the future.
患者报告的结局测量（PROMs）越来越多地用于衡量中风临床实践中的健康问题。然而，这些 PROM 在常规中风护理中的实施仍处于起步阶段。为了了解在缺血性中风护理中使用 PROM 的价值，我们探讨了患者对 PROM 的体验以及在中风后常规出院随访时的咨询体验。
在这项前瞻性混合方法研究中，荷兰的两家医院招募了缺血性中风患者，让他们完成一份关于使用 PROM 和中风后常规随访咨询的评估问卷。此外，还进行了电话访谈，以获取关于他们使用 PROM 体验的深入信息。
共有 63 名患者完成了评估问卷，其中 10 名患者还接受了访谈。大多数患者（82.2-96.6%）认为完成 PROMs 是可行和相关的。一半的患者（49.2-51.6%）认为 PROMs 对咨询有用，大多数患者（87.3-96.8%）认为咨询是一种积极的体验。完成 PROMs 使 51.6%的患者对与中风相关的问题有了更深入的了解。近 75%的患者认为 PROMs 有助于提供更深入的了解，60%的患者报告在咨询期间讨论了 PROM 结果。接受访谈的患者报告说，PROMs 具有附加价值，特别是在安排进一步的护理时，可以更全面地了解问题，并确保在咨询期间讨论所有重要的话题。
完成 PROMs 似乎对接受出院后咨询的中风患者是可行的；绝大多数患者认为对自己或医疗保健提供者有附加价值。我们建议医疗保健提供者与患者讨论 PROM 结果，以提高患者对 PROM 的价值。这也可以提高未来完成 PROM 的意愿。
