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眼不见,心不烦——解读并质疑学习障碍者和/或自闭症患者的重新机构化现象

Out of Sight, Out of Mind-Explaining and Challenging the Re-Institutionalisation of People With Learning Disabilities and/or Autistic People.

作者信息

Glasby Jon, Waring Justin, Miller Robin, Glasby Anne-Marie, Ince Rebecca

机构信息

Department of Social Work and Social Care, University of Birmingham, Birmingham, UK.

School of Social Sciences and Humanities, Loughborough University, Loughborough, UK.

出版信息

Sociol Health Illn. 2025 Feb;47(2):e70009. doi: 10.1111/1467-9566.70009.

Abstract

During the twentieth century, many countries underwent processes of 'de-institutionalisation'-closing 'asylums' for people with mental health problems, learning disabilities and dementia. Despite this, the UK has witnessed a subsequent process of 're-institutionalisation' with the creation of new public/private sector facilities providing 'secure' care to large numbers of people, who can be residents for many years with no sense of when they may leave. In 2023, 2035 people with learning disabilities and/or autistic people were receiving inpatient hospital care in England, with 54% in hospital for over two years. Drawing on the lived experience of people in hospital/families, and the practice knowledge of front-line staff, this paper critically analyses why this process of re-institutionalisation may be taking place. Our argument is that institutional forms of care have gradually been re-introduced-despite the influence of neoliberal health policies that have previously aimed at deinstitutionalisation and self-care-because some people are viewed as 'too difficult' to govern through the prevailing dispositive of self-care, and therefore become the subjects of more disciplinary forms of power. Once in hospital, the primary routes to 'escape' require performative acts of 'good conduct' that give confidence to professionals of a person's capacity for self-government.

摘要

在二十世纪,许多国家经历了“去机构化”进程——关闭为有心理健康问题、学习障碍和痴呆症患者设立的“收容所”。尽管如此,英国随后却见证了一个“重新机构化”的过程,新的公共/私营部门设施应运而生,为大量人群提供“安全”护理,这些人可能会在那里居住多年,却不知道自己何时能够离开。2023年,在英格兰,2035名有学习障碍和/或自闭症的人正在接受住院治疗,其中54%的人住院时间超过两年。本文借鉴住院患者及其家属的生活经历以及一线工作人员的实践知识,批判性地分析了这种重新机构化过程可能发生的原因。我们的观点是,尽管新自由主义健康政策此前旨在推动去机构化和自我护理,但机构化的护理形式却逐渐重新出现,因为有些人被视为通过现行的自我护理方式“太难管理”,因此成为更具纪律性权力形式的对象。一旦住院,“逃离”的主要途径需要通过“良好行为”的表现来实现,这能让专业人员相信一个人具备自我管理的能力。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/f5d5/11822089/687575f509c6/SHIL-47-0-g001.jpg

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