Markić Dean, Minić Željka, Šimičić Josip, Kuljanić Karin, Strčić Josip, Bonifačić David, Sušanj Ivan Marin, Jakšić Ante, Sveško Visentin Helena, Ehrman Robert, Marinović Marin
Department of Urology, Clinical Hospital Center Rijeka, 51000 Rijeka, Croatia.
Faculty of Medicine, University of Rijeka, 51000 Rijeka, Croatia.
J Clin Med. 2025 Jan 21;14(3):670. doi: 10.3390/jcm14030670.
Autonomic dysreflexia (AD) is a clinical syndrome affecting persons with spinal cord injury (SCI). The aim of the study was to present the experience of individuals with SCI and AD in Croatia. Single-center questionnaire study. Setting: Faculty of Medicine, University of Rijeka, Rijeka, Croatia. Persons with SCI were divided into those with an SCI at T6 and above ( = 41) and those with an SCI at T7 and below ( = 29). Based on anamnestic data, patients with an SCI at T6 and above were further divided into those with and without self-reported clinical symptoms of AD (respectively: = 33 and = 8). The online survey included 23 questions of various types. It consisted of a general (demographic) section, section with specific questions about AD, and a section on self-assessment and quality of life. Based on the answers, the experience and knowledge of AD among individuals with an SCI in Croatia was assessed. A total of 70 individuals with an SCI completed the whole survey. The average age was 40.6 years. The patients were predominantly male (72.9%) and mostly with a traumatic SCI (84.3%). Of the 70 individuals with an SCI, 35 (50%) reported they were familiar with AD, with the majority indicating that the internet was their primary source of information. Among those with an SCI who were unaware of AD, most (34/35 = 97.1%) wanted to learn about AD. The self-assessed quality of life was insignificantly better in patients with an SCI below T6 than in those with higher lesions. Patients with AD reported different symptoms and the most frequently reported symptom was a headache (70%). In 64% of participants, the primary trigger of AD were issues with the urinary bladder. In most individuals (55%), symptoms were not recognized by the healthcare providers. The individuals with AD were dissatisfied with the information about AD they received from doctors or nurses. Overall, 61% of all participants with AD rated their quality of life as good. Persons with an SCI are not adequately informed about AD. In most persons with AD, their symptoms are not properly recognized by healthcare providers. Our results suggest the need for more education of healthcare professionals about AD.
自主神经反射异常（AD）是一种影响脊髓损伤（SCI）患者的临床综合征。本研究的目的是介绍克罗地亚脊髓损伤合并自主神经反射异常患者的经历。单中心问卷调查研究。地点：克罗地亚里耶卡大学医学院。脊髓损伤患者被分为胸6及以上脊髓损伤患者（n = 41）和胸7及以下脊髓损伤患者（n = 29）。根据既往病史资料，胸6及以上脊髓损伤患者进一步分为有和无自主神经反射异常自我报告临床症状的患者（分别为：n = 33和n = 8）。在线调查包括23个不同类型的问题。它由一个一般（人口统计学）部分、关于自主神经反射异常的特定问题部分以及一个自我评估和生活质量部分组成。根据答案，评估了克罗地亚脊髓损伤患者对自主神经反射异常的经历和认识。共有70名脊髓损伤患者完成了整个调查。平均年龄为40.6岁。患者以男性为主（72.9%），且大多为创伤性脊髓损伤（84.3%）。在70名脊髓损伤患者中，35名（50%）报告他们了解自主神经反射异常，大多数人表示互联网是他们的主要信息来源。在那些不了解自主神经反射异常的脊髓损伤患者中，大多数（34/35 = 97.1%）希望了解自主神经反射异常。胸6以下脊髓损伤患者自我评估的生活质量略好于损伤程度更高的患者。自主神经反射异常患者报告了不同的症状，最常报告的症状是头痛（70%）。在64%的参与者中，自主神经反射异常的主要诱因是膀胱问题。在大多数个体（55%）中，症状未被医护人员识别。自主神经反射异常患者对从医生或护士那里获得的关于自主神经反射异常的信息不满意。总体而言，所有自主神经反射异常参与者中有61%将他们的生活质量评为良好。脊髓损伤患者未得到关于自主神经反射异常的充分告知。在大多数自主神经反射异常患者中，他们的症状未被医护人员正确识别。我们的结果表明需要对医护人员进行更多关于自主神经反射异常的教育。
