Zeineddine Maya, Issa Malak, Ismail Ghida, El-Hajj Taghrid, Tfaily Hassan, Dassouki Mohamad, Assaf Elie, Abboud Halim, Dimassi Hani, Salameh Pascale, Boumediene Farid, Al-Hajje Amal, Yamout Bassem
Inserm U1094, IRD U270, Univ. Limoges, CHU Limoges, EpiMaCT - Epidemiology of chronic diseases in tropical zone, Institute of Epidemiology and Tropical Neurology, Omega Health, Limoges, France; School of Pharmacy, Lebanese American University, Byblos, Lebanon.
School of Pharmacy, Lebanese University, Beirut, Lebanon.
Mult Scler Relat Disord. 2025 Mar;95:106255. doi: 10.1016/j.msard.2024.106255. Epub 2024 Dec 29.
Disease-related knowledge of people with multiple sclerosis (MS) can influence self-management, coping, treatment adherence, and clinical health outcomes. Studies assessing MS patients' knowledge are scarce.
The aim of this study was to evaluate the awareness and knowledge of Lebanese MS patients regarding their disease and identify the factors associated with poor knowledge.
This cross-sectional, multicenter, survey-based study was conducted between June and September 2023 among Lebanese MS patients with confirmed diagnosis. MS knowledge was assessed using the validated MS knowledge questionnaire (MSKQ-25).
A total of 350 patients were included. Most (92.3 %) were diagnosed with relapsing-remitting MS, and 65.1 % were female with a mean age of 39.4 ± 11.4 years. The mean MSKQ-25 score was 15.1 ± 3.9. The mean percentage of correct answers was 60.4 % ± 15.9, with 65.1 % scoring ≥60 %. Multivariate analysis identified higher education (p = 0.004) and residence in Beirut (p = 0.025) as significant predictors of increased knowledge levels.
Lebanese MS patients demonstrated adequate disease knowledge. Higher education and residing in the capital Beirut were key contributors to improved knowledge.
多发性硬化症(MS)患者的疾病相关知识会影响自我管理、应对方式、治疗依从性及临床健康结局。评估MS患者知识水平的研究较少。
本研究旨在评估黎巴嫩MS患者对其疾病的认知和了解情况,并确定与知识水平欠佳相关的因素。
本横断面、多中心、基于调查的研究于2023年6月至9月间在确诊的黎巴嫩MS患者中开展。使用经过验证的MS知识问卷(MSKQ-25)评估MS知识。
共纳入350例患者。大多数(92.3%)被诊断为复发缓解型MS,65.1%为女性,平均年龄为39.4±11.4岁。MSKQ-25的平均得分为15.1±3.9。正确答案的平均百分比为60.4%±15.9,65.1%的患者得分≥60%。多变量分析确定高等教育(p = 0.004)和居住在贝鲁特(p = 0.025)是知识水平提高的显著预测因素。
黎巴嫩MS患者表现出足够的疾病知识。高等教育和居住在首都贝鲁特是知识水平提高的关键因素。