Moyle Wendy, Spencer Melinda, Qi Meiling, Li Na, Pu Lihui
School of Nursing & Midwifery, Griffith University, Australia.
Australian Aged Care Technologies Collaborative, Griffith University, Australia.
Dementia (London). 2025 Aug;24(6):1196-1222. doi: 10.1177/14713012251321558. Epub 2025 Feb 14.
Carers of people with young-onset dementia can be challenged by the care they provide. Little is known about the types of telephone and online support programs and assistive technologies that may help to assist them with caregiving. This review aimed to identify telephone and online support programs and assistive technologies that informal carers find useful for caring for people with young-onset dementia. A systematic review followed Preferred Reporting Items for Systematic Reviews and Meta-Analyses guidelines. An electronic search of the following five English databases was conducted: PubMed, PsycINFO, CINAHL, Web of Science, and Embase. In addition, the reference lists of eligible studies were manually searched to identify further studies. Databases were searched using synonyms and derivates for "dementia," "Alzheimer's disease," "young onset", "early onset", "caregiver", "online" and "technology". We found 12 manuscripts that meet the study inclusion criteria. The dominant technologies were telephone and online support programs. Other assistive technologies included safety and monitoring support, telehealth, and a simple TV remote control. While carers reported positive effects of the telephone and online support programs, and technologies, such as improved self-efficacy, satisfaction, knowledge, well-being, and reduced burden, stress, depression, and anxiety, the studies were scarce, and a limited number of assistive technologies were explored. Given the increasing number of telephone and online programs and assistive technologies, it is disappointing to find a paucity of available manuscripts and the limited number of technologies explored for this population. Technologies to assist this population need to be developed and evaluated.
早发性痴呆患者的照料者可能会受到他们所提供照料的挑战。对于可能有助于他们进行照料的电话和在线支持项目以及辅助技术的类型，人们了解甚少。本综述旨在确定非正式照料者认为对照顾早发性痴呆患者有用的电话和在线支持项目以及辅助技术。遵循系统评价和Meta分析的首选报告项目指南进行系统评价。对以下五个英文数据库进行了电子检索：PubMed、PsycINFO、CINAHL、科学网和Embase。此外，还手动检索了符合条件的研究的参考文献列表，以识别更多研究。使用“痴呆症”“阿尔茨海默病”“早发”“早期发病”“照料者”“在线”和“技术”的同义词及衍生词对数据库进行检索。我们发现了12篇符合研究纳入标准的手稿。主要技术是电话和在线支持项目。其他辅助技术包括安全和监测支持、远程医疗以及一个简单的电视遥控器。虽然照料者报告了电话和在线支持项目以及技术的积极效果，如自我效能感提高、满意度提高、知识增加、幸福感增强以及负担减轻、压力减轻、抑郁和焦虑减少，但相关研究较少，且探索的辅助技术数量有限。鉴于电话和在线项目以及辅助技术的数量不断增加，发现可用手稿数量稀少以及针对该人群探索的技术数量有限，令人失望。需要开发和评估帮助这一人群的技术。
