Galvin James E, Germain Deborah M, Moore Claudia P, Jeanty Jennifer A, Tofaeono Vaatausili, Wiese Lisa K
Department of Neurology Comprehensive Center for Brain Health Miller School of Medicine University of Miami Boca Raton Florida USA.
American Samoa Community Cancer Coalition Pago American Samoa USA.
Alzheimers Dement (N Y). 2025 Feb 19;11(1):e70054. doi: 10.1002/trc2.70054. eCollection 2025 Jan-Mar.
Low health literacy about Alzheimer's disease and related disorders (ADRD) may limit help-seeking, early detection, and enrollment in clinical trials, particularly in minoritized communities. We created the Dementia Literacy Assessment (DeLA) to improve ADRD health literacy.
The DeLA, a storytelling method that included culturally adaptable vignettes embedded with important factoids about ADRD, was administered to 213 participants from urban and rural regions of Palm Beach and Broward County in Florida and 193 participants in American Samoa.
The DeLA increased dementia health literacy and performed well across different participant characteristics (age, sex, education, geographic locale, race, ethnicity, and cognitive performance). Gains in ADRD health literacy were associated with older age, more education, better socioeconomic status, greater resilience, and better cognitive performance.
Increasing ADRD health literacy could increase health-seeking behaviors in diverse populations for treatment, enrich recruitment into clinical trials, and may help reduce disparities in health outcomes.
Low health literacy about Alzheimer's disease and related disorders (ADRD) may limit help-seeking, early detection, and enrollment in clinical trials, particularly in minoritized communities.The Dementia Literacy Assessment (DeLA), a storytelling method that included culturally adaptable vignettes embedded with important factoids about ADRD, was administered to 406 participants from urban and rural regions of Palm Beach and Broward County in Florida and American Samoa (11.8% White, 39.8% Black or African American, and 48.4% Pacific Islander [predominantly Samoan] individuals).The DeLA increased dementia health literacy and performed well across different participant characteristics (age, sex, education, geographic locale, race, and cognitive performance).Gains in ADRD health literacy were associated with older age, more education, better socioeconomic status, greater resilience, and better cognitive performance.Increasing ADRD health literacy could increase health-seeking behaviors in diverse populations for treatment, enrich recruitment into clinical trials, and help reduce disparities in health outcomes.
关于阿尔茨海默病及相关疾病（ADRD）的健康素养较低，可能会限制寻求帮助、早期检测以及参与临床试验，尤其是在少数族裔社区。我们创建了痴呆症素养评估（DeLA）以提高ADRD健康素养。
对来自佛罗里达州棕榈滩县和布劳沃德县城乡地区的213名参与者以及美属萨摩亚的193名参与者进行了DeLA评估，这是一种讲故事的方法，其中包含融入了有关ADRD重要信息片段的文化适应性小插曲。
DeLA提高了痴呆症健康素养，并且在不同参与者特征（年龄、性别、教育程度、地理位置、种族、民族和认知表现）方面表现良好。ADRD健康素养的提高与年龄较大、教育程度较高、社会经济地位较好、更强的适应能力以及更好的认知表现相关。
提高ADRD健康素养可以增加不同人群寻求治疗的行为，丰富临床试验的招募工作，并可能有助于减少健康结果方面的差异。
关于阿尔茨海默病及相关疾病（ADRD）的健康素养较低，可能会限制寻求帮助、早期检测以及参与临床试验，尤其是在少数族裔社区。对来自佛罗里达州棕榈滩县和布劳沃德县城乡地区以及美属萨摩亚的406名参与者（11.8%为白人，39.8%为黑人或非裔美国人，48.4%为太平洋岛民[主要是萨摩亚人]）进行了痴呆症素养评估（DeLA），这是一种讲故事的方法，其中包含融入了有关ADRD重要信息片段的文化适应性小插曲。DeLA提高了痴呆症健康素养，并且在不同参与者特征（年龄、性别、教育程度、地理位置、种族和认知表现）方面表现良好。ADRD健康素养的提高与年龄较大、教育程度较高、社会经济地位较好、更强的适应能力以及更好的认知表现相关。提高ADRD健康素养可以增加不同人群寻求治疗的行为，丰富临床试验的招募工作，并有助于减少健康结果方面的差异。
