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护士在医院环境中照顾被诊断为镰状细胞贫血的儿童及其家庭的作用:近期文献的快速综述

The Role of Nurses Caring for Children Diagnosed with Sickle Cell Anemia and Their Families in a Hospital Setting: A Rapid Review of the Recent Literature.

作者信息

Freitas Eduarda, Loura David, Inês Mariana, Martins Carla, Duarte Inês

机构信息

Hospital Dona Estefânia, Local Health Unit of St. José, St. Jacinta Marto, 1169-045 Lisbon, Portugal.

Nursing School of Lisbon (ESEL), Av. Professor Egas Moniz, 1600-096 Lisbon, Portugal.

出版信息

Healthcare (Basel). 2025 Feb 14;13(4):413. doi: 10.3390/healthcare13040413.

DOI:10.3390/healthcare13040413
PMID:39997288
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11855812/
Abstract

: Sickle cell anemia (SCA) affects a significant number of children worldwide, for whom the progression of the disease can lead to functional disability-impaired development. Nurses are pivotal in providing holistic care to these children and their families. This review aims to identify recent evidence on the role of nurses in intervening with children with SCA and their families in a hospital setting. : A rapid review reported under the PRISMA methodology was carried out in the CINAHL, MEDLINE, and Scopus databases with the expression (sickle cell anemia OR sickle cell disease) AND (child* OR family OR pediatric*) AND (nurs* OR "nursing interventions" OR "pediatric nursing") AND (hospital*), considering studies between 2019 and 2024, written in English, identifying articles with insights about the role of nurses in this context. Articles other than primary or secondary studies were excluded. Data were analyzed through a rapid qualitative approach. : Fifty-two studies were identified and seventeen articles were included. The nurse's role is key and multidisciplinary, focusing on the child and family (care management and therapeutic education), the team (training, and the promotion of safety and quality of care), and the health system (optimizing access to care and promoting adequate resources for its implementation). Such a role is important for short-term clinical problems and to prevent long-term complications. : Nurses play a central role in empowering families and coordinating multidisciplinary care. Greater investment is needed at a clinical level, through a more effective response to the needs of these patients, and in research, through experimental studies and other designs focused on multidisciplinary interventions.

摘要

镰状细胞贫血(SCA)影响着全球大量儿童,疾病的进展可能导致这些儿童功能残疾,发育受损。护士在为这些儿童及其家庭提供整体护理方面起着关键作用。本综述旨在确定近期关于护士在医院环境中干预患有SCA的儿童及其家庭方面作用的证据。:按照PRISMA方法进行了一项快速综述,在CINAHL、MEDLINE和Scopus数据库中检索,检索词为(镰状细胞贫血或镰状细胞病)AND(儿童或家庭或儿科)AND(护士或“护理干预”或“儿科护理”)AND(医院),纳入2019年至2024年期间撰写的英文研究,识别有关护士在此背景下作用的见解的文章。排除初级或二级研究以外的文章。通过快速定性方法分析数据。:共识别出52项研究,纳入17篇文章。护士的作用至关重要且具有多学科性,重点关注儿童和家庭(护理管理和治疗教育)、团队(培训以及促进护理安全和质量)以及卫生系统(优化医疗服务获取并促进实施所需的充足资源)。这样的作用对于短期临床问题以及预防长期并发症都很重要。:护士在增强家庭能力和协调多学科护理方面发挥核心作用。在临床层面需要加大投入,通过更有效地满足这些患者的需求,在研究方面,通过专注于多学科干预的实验研究和其他设计来加大投入。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/d682/11855812/e28608a54a22/healthcare-13-00413-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/d682/11855812/0005643173d0/healthcare-13-00413-g002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/d682/11855812/e28608a54a22/healthcare-13-00413-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/d682/11855812/0005643173d0/healthcare-13-00413-g002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/d682/11855812/e28608a54a22/healthcare-13-00413-g001.jpg

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本文引用的文献

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BMC Pediatr. 2025 Jan 7;25(1):10. doi: 10.1186/s12887-024-05359-w.
2
Living with sickle cell in Uganda: A comprehensive perspective on challenges, coping strategies, and health interventions.乌干达镰状细胞病患者的生活:对挑战、应对策略及健康干预措施的全面审视
Medicine (Baltimore). 2024 Dec 20;103(51):e41062. doi: 10.1097/MD.0000000000041062.
3
Providing the Tools to Facilitate Quality Care for Children with Sickle Cell Disease.
为镰状细胞病患儿提供优质护理的工具。
J Health Care Poor Underserved. 2024;35(3S):143-150.
4
Health Supervision for Children and Adolescents With Sickle Cell Disease: Clinical Report.儿童和青少年镰状细胞病的健康监督:临床报告。
Pediatrics. 2024 Aug 1;154(2). doi: 10.1542/peds.2024-066842.
5
SNAP: Supportive non-invasive ventilation for acute chest syndrome prevention for hospitalized children with sickle cell disease: Perspectives of patients, parents, and the healthcare team.SNAP:支持性无创通气预防住院镰状细胞病患儿急性胸部综合征:患者、家长和医疗团队的观点。
Pediatr Blood Cancer. 2024 Sep;71(9):e31142. doi: 10.1002/pbc.31142. Epub 2024 Jun 19.
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