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乌干达镰状细胞病患者的生活:对挑战、应对策略及健康干预措施的全面审视

Living with sickle cell in Uganda: A comprehensive perspective on challenges, coping strategies, and health interventions.

作者信息

Obeagu Emmanuel Ifeanyi, Obeagu Getrude Uzoma

机构信息

Department of Medical Laboratory Science, Kampala International University, Ishaka, Uganda.

School of Nursing Science, Kampala International University, Ishaka, Uganda.

出版信息

Medicine (Baltimore). 2024 Dec 20;103(51):e41062. doi: 10.1097/MD.0000000000041062.

Abstract

Sickle cell anemia (SCA) is a hereditary blood disorder with profound implications for affected individuals, particularly in resource-limited settings such as Uganda. This review explores the multifaceted aspects of SCA in Uganda, focusing on epidemiology, challenges faced by individuals, coping strategies, healthcare disparities, and community support. The study incorporates a thorough examination of the genetic landscape, prevalence, and the impact of SCA on the quality of life in Uganda. Coping strategies and resilience play a pivotal role in mitigating the impact of SCA on affected individuals. This review critically evaluates the various coping mechanisms employed by individuals in Uganda and the resilience demonstrated in the face of chronic illness. It explores the psychological, social, and cultural dimensions of coping and resilience, shedding light on adaptive strategies that contribute to improved quality of life. This article aims to contribute valuable insights into the specific challenges faced by individuals with SCA in Uganda, offering a foundation for targeted interventions, improved healthcare policies, and increased awareness within both the medical community and the broader society.

摘要

镰状细胞贫血(SCA)是一种遗传性血液疾病,对受影响的个体有深远影响,在乌干达等资源有限的环境中尤其如此。本综述探讨了乌干达SCA的多方面情况,重点关注流行病学、个体面临的挑战、应对策略、医疗保健差距以及社区支持。该研究全面审视了乌干达的基因状况、患病率以及SCA对生活质量的影响。应对策略和恢复力在减轻SCA对受影响个体的影响方面起着关键作用。本综述批判性地评估了乌干达个体采用的各种应对机制以及面对慢性病所表现出的恢复力。它探讨了应对和恢复力的心理、社会和文化层面,揭示了有助于提高生活质量的适应性策略。本文旨在为乌干达SCA患者面临的具体挑战提供有价值的见解,为有针对性的干预措施、改进医疗保健政策以及提高医学界和更广泛社会的认识奠定基础。

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本文引用的文献

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Sickle cell disease.镰状细胞病。
Nat Rev Dis Primers. 2018 Mar 15;4:18010. doi: 10.1038/nrdp.2018.10.
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Sickle cell disease.镰状细胞病。
Lancet. 2017 Jul 15;390(10091):311-323. doi: 10.1016/S0140-6736(17)30193-9. Epub 2017 Feb 1.
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Sickle cell disease: new opportunities and challenges in Africa.镰状细胞病:非洲的新机遇与挑战
ScientificWorldJournal. 2013;2013:193252. doi: 10.1155/2013/193252. Epub 2013 Sep 19.

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