少数民族肝癌患者自我管理行为评估量表的研制

Development of a self-management behavior assessment scale for liver cancer patients from ethnic minorities.

作者信息

Liu Beijia, Chen Jun, Zhao Xue, Gui Qian, Lin Ying, He Bingrong, Zhang Lixia, Feng Lijuan, Zhang Yin, Yu Anyun, Liu Meiling, Tang Xiaoli, Huang Guiyu

机构信息

Department of Comprehensive Ward, Sichuan Clinical Research Center for Cancer, Sichuan Cancer Hospital & Institute, Sichuan Cancer Center, School of Medicine, University of Electronic Science and Technology of China, Chengdu, China.

Department of Radiation Oncology, Radiation Oncology Key Laboratory of Sichuan Province, Sichuan Cancer Hospital & Institute, Sichuan Cancer Center, University of Electronic Science and Technology of China, Chengdu, China.

出版信息

BMC Health Serv Res. 2025 Feb 25;25(1):315. doi: 10.1186/s12913-025-12272-0.

DOI:10.1186/s12913-025-12272-0

PMID:40001076

原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11863450/

Abstract

BACKGROUND

Liver cancer poses significant health challenges worldwide, particularly for ethnic minority populations, who often face barriers such as cultural differences, limited health literacy, and inadequate access to healthcare, contributing to poorer self-management and treatment outcomes. Existing self-management tools do not adequately address the unique needs of ethnic minority liver cancer patients, necessitating the development of a culturally tailored assessment scale.

METHODS

Grounded in the Health Belief Model, this study developed a self-management behavior assessment scale specifically for ethnic minority liver cancer patients. The scale was constructed using a comprehensive literature review, semi-structured qualitative interviews with 11 ethnic minority liver cancer patients, and two rounds of expert consultation via the Delphi method. The initial item pool was refined through expert input to ensure relevance and cultural sensitivity.

RESULTS

Through literature review and semi-structured qualitative interviews with 11 ethnic minority liver cancer patients, four key dimensions were identified: health behavior management, disease perception and cognition, psychological and emotional regulation, and information acquisition and decision-making participation. These dimensions and items were further refined through two rounds of expert consultation using the Delphi method, ensuring the scale's cultural relevance and content validity. As a result, a self-management behavior assessment scale was developed, consisting of four dimensions and 31 items tailored to the specific needs of ethnic minority liver cancer patients.

CONCLUSION

This newly developed scale provides a culturally sensitive tool to assess self-management behaviors in ethnic minority liver cancer patients. It has the potential to enhance patient care by identifying culturally specific barriers to effective self-management. Further research is needed to validate the scale's reliability and applicability in broader patient populations.

摘要

背景

肝癌在全球范围内对健康构成重大挑战，尤其是对少数族裔人群而言，他们常常面临文化差异、健康素养有限以及医疗服务获取不足等障碍，这些因素导致自我管理和治疗效果较差。现有的自我管理工具未能充分满足少数族裔肝癌患者的独特需求，因此有必要开发一种针对特定文化背景的评估量表。

方法

本研究以健康信念模型为基础，专门为少数族裔肝癌患者开发了一种自我管理行为评估量表。该量表的构建采用了全面的文献综述、对11名少数族裔肝癌患者进行的半结构化定性访谈，以及通过德尔菲法进行的两轮专家咨询。通过专家意见对初始项目库进行了完善，以确保其相关性和文化敏感性。

结果

通过文献综述和对11名少数族裔肝癌患者的半结构化定性访谈，确定了四个关键维度：健康行为管理、疾病认知与认识、心理和情绪调节以及信息获取与决策参与。通过两轮德尔菲法专家咨询，对这些维度和项目进行了进一步完善，确保了量表的文化相关性和内容效度。结果，开发出了一种自我管理行为评估量表，该量表由四个维度和31个项目组成，专门针对少数族裔肝癌患者的特定需求。