Hershberger Patricia E, Adlam Kirby, Driessnack Martha, Gruss Valerie, Grotevant Harold D, Klock Susan C, Pasch Lauri, Gallo Agatha M
Department of Health Behavior and Clinical Sciences, School of Nursing, University of Michigan, 400 North Ingalls St., Ann Arbor, MI 48109, USA; College of Nursing, University of Illinois Chicago, 845 S. Damen Ave., MC 802, Chicago, IL 60612, USA.
Department of Human Development Nursing Science, College of Nursing, University of Illinois Chicago, 845 S. Damen Ave., MC 802, Chicago, IL 60612, USA.
J Pediatr Nurs. 2025 Mar-Apr;81:e134-e142. doi: 10.1016/j.pedn.2025.02.009. Epub 2025 Feb 26.
To understand the views of parent participants in our larger pilot randomized controlled trial (RCT) about the Tool to Empower Parental TeLling and TaLking or the TELL Tool, a digital, psychoeducational and decision-support intervention; and to foster understanding about how pediatric nurse practitioners (PNPs) viewed integrating the TELL Tool into pediatric clinical settings.
In this qualitative descriptive study, a purposive sample of 10 parents and 10 PNPs completed in-depth, semi-structured interviews by Zoom. The recordings were auto transcribed, checked for accuracy, and analyzed for themes. The rigorous and accelerated data reduction (RADaR) technique was incorporated into the analytic plan.
Five themes emerged following analysis, including Perceptions, Optimal Time for Delivery, Most Appropriate Healthcare Provider to Counsel Parents about Disclosure, Challenges to Administering in Practice, and Recommendations for Implementing the TELL Tool into Pediatric Healthcare Settings.
Parents found the TELL Tool to be helpful and PNPs were supportive of incorporating the TELL Tool into clinical practice. Parents thought the TELL Tool increased their confidence about sharing information and appreciated its age-appropriate approach and language. PNPs perceived the tool as supporting their ability to provide anticipatory guidance and counseling/education to families seeking support in beginning and subsequent conversations with their children about their genetic origins.
The TELL Tool is an evidence-based intervention that can serve as a resource for PNPs while supporting parents as they navigate challenges about talking with their children about their genetic origins through gamete and embryo donation.
了解我们规模更大的试点随机对照试验（RCT）中的家长参与者对“增强家长告知与交谈工具”（TELL工具）的看法，这是一种数字化、心理教育和决策支持干预措施；并增进对儿科执业护士（PNP）如何看待将TELL工具整合到儿科临床环境中的理解。
在这项定性描述性研究中，通过Zoom对10名家长和10名PNP进行了有目的抽样，完成了深入的半结构化访谈。录音自动转录，检查准确性，并分析主题。分析计划中纳入了严格且加速的数据缩减（RADaR）技术。
分析后出现了五个主题，包括认知、最佳交付时间、就信息披露向家长提供咨询的最合适医疗保健提供者、在实践中实施的挑战以及将TELL工具应用于儿科医疗环境的建议。
家长们认为TELL工具很有帮助，PNP支持将TELL工具纳入临床实践。家长们认为TELL工具增强了他们分享信息的信心，并赞赏其适合年龄的方法和语言。PNP认为该工具有助于他们为那些在与孩子开始及后续关于基因起源的对话中寻求支持的家庭提供预期指导和咨询/教育。
TELL工具是一种基于证据的干预措施，可为PNP提供资源，同时支持家长应对通过配子和胚胎捐赠与孩子谈论基因起源时面临的挑战。
