Bosire Edna N, Blackmon Karen, Kamau Lucy W, Udeh-Momoh Chinedu, Sokhi Dilraj, Shah Jasmit, Mbugua Sylvia, Muchungi Kendi, Meier Irene, Narayan Vaibhav, Nesic Olivera, Merali Zul
Brain & Mind Institute, Aga Khan University, Nairobi, Kenya.
School of Medicine, Wake Forest University, Winston-Salem, NC, USA.
J Alzheimers Dis. 2025 Apr;104(3):862-874. doi: 10.1177/13872877251320411. Epub 2025 Mar 2.
BackgroundThe rising number of older people, including those living with Alzheimer's disease and related dementias (AD/ADRD) in sub-Saharan Africa (SSA) highlights the need for an improved clinical diagnosis and management of the diseases.ObjectiveTo understand and describe healthcare providers' perceptions and practices regarding AD/ADRD diagnosis and care in Kenya, not previously reported.MethodsThis was an ethnographic study involving observations and semi-structured interviews with healthcare providers working at the Aga Khan University Hospital, Nairobi (AKUHN) Kenya. Twenty-one healthcare providers were purposively recruited and interviewed in English, with the data transcribed verbatim and thematically analysed using Nvivo version 14.ResultsOur findings reveal that AKUHN's dementia diagnostic pathway aligns with universal best practice models and involves multidisciplinary care. Yet, healthcare providers noted that this level of care is not representative of most public hospitals in Kenya, where a lack of diagnostic equipment and trained staff severely limits patient access to timely dementia care. In addition, new medications that can slow AD/ADRD progression, are not readily available in Africa, including Kenya. We also identified barriers to timely diagnosis and care such as: lack of dementia policy and guidelines, limited expertise of healthcare providers, high cost of care, and sociocultural factors, including stigma.ConclusionsWe emphasize the need for the Kenyan government and relevant stakeholders to develop social and healthcare policies and allocate resources to raise awareness about dementia and combat stigma; train healthcare providers; improve early detection and service delivery through access to diagnostic tools, and establish clear guidelines/protocols for AD/ADRD care.
背景
撒哈拉以南非洲地区(SSA)老年人数量不断增加,其中包括患有阿尔茨海默病及相关痴呆症(AD/ADRD)的患者,这凸显了改善这些疾病临床诊断和管理的必要性。
目的
了解并描述肯尼亚医疗服务提供者对AD/ADRD诊断和护理的看法及做法,此前尚无相关报道。
方法
这是一项人种志研究,包括对肯尼亚内罗毕阿迦汗大学医院(AKUHN)的医疗服务提供者进行观察和半结构化访谈。有目的地招募了21名医疗服务提供者,用英语进行访谈,数据逐字转录,并使用Nvivo 14版本进行主题分析。
结果
我们的研究结果显示,AKUHN的痴呆症诊断途径与普遍的最佳实践模式一致,涉及多学科护理。然而,医疗服务提供者指出,这种护理水平并不代表肯尼亚大多数公立医院的情况,在这些医院,缺乏诊断设备和训练有素的工作人员严重限制了患者及时获得痴呆症护理的机会。此外,包括肯尼亚在内的非洲地区不易获得能够延缓AD/ADRD进展的新药。我们还确定了及时诊断和护理的障碍,如:缺乏痴呆症政策和指南、医疗服务提供者专业知识有限、护理成本高以及包括耻辱感在内的社会文化因素。
结论
我们强调肯尼亚政府和相关利益攸关方需要制定社会和医疗政策,并分配资源以提高对痴呆症的认识并消除耻辱感;培训医疗服务提供者;通过提供诊断工具改善早期检测和服务提供,并为AD/ADRD护理制定明确的指南/方案。