Hill Chloé E, Vanderboll Kathryn, Parent Jack M, Skolarus Lesli E, Zahuranec Darin B
Department of Neurology, University of Michigan, Ann Arbor, MI, USA.
Taubman Health Sciences Library, University of Michigan Library, Ann Arbor, MI, USA.
Epilepsy Behav. 2025 May;166:110359. doi: 10.1016/j.yebeh.2025.110359. Epub 2025 Mar 4.
The care of people with epilepsy can be complex. Seizure control is a top priority, however there are other important health-related factors that can impact the well-being of a person with epilepsy. Understanding the range of health priorities and treatment preferences is a critical step in facilitating patient-centered care. In this narrative review, we queried four electronic databases with search terms including patient preferences, needs, priorities, and goals. In total, 20 articles met criteria to be included in the review; these included both quantitative and qualitative analyses of patient responses. Key issues identified were a variety of seizure-specific priorities (such as frequency, duration, severity, warning) and non-seizure medical priorities (such as cognition, mood, physical side effects). Support needs (such as psychological support, improved access to health care) and life goals (such as driving, relationships, work) were also prevalent and emphasized. The range of these findings support the importance of querying individual priorities to promote patient-centered care. Additionally, our results demonstrate that non-medical considerations are an important piece of the illness of epilepsy and should be considered in health care encounters as possible to improve patient outcomes and overall well-being.
癫痫患者的护理可能很复杂。控制癫痫发作是首要任务，然而还有其他重要的健康相关因素会影响癫痫患者的福祉。了解一系列健康优先事项和治疗偏好是促进以患者为中心的护理的关键一步。在这篇叙述性综述中，我们用包括患者偏好、需求、优先事项和目标等检索词查询了四个电子数据库。总共有20篇文章符合纳入综述的标准；这些文章包括对患者反应的定量和定性分析。确定的关键问题包括各种癫痫发作特定的优先事项（如发作频率、持续时间、严重程度、先兆）和非癫痫发作的医疗优先事项（如认知、情绪、身体副作用）。支持需求（如心理支持、改善医疗保健服务的可及性）和生活目标（如驾驶、人际关系、工作）也很普遍且受到重视。这些研究结果的范围支持了询问个体优先事项以促进以患者为中心的护理的重要性。此外，我们的结果表明，非医疗方面的考虑是癫痫疾病的一个重要组成部分，在医疗保健过程中应尽可能予以考虑，以改善患者的治疗效果和整体福祉。
