Palmer Kaitlyn, Cochran Jill, McGinley Marisa
From the Mellen Center for Multiple Sclerosis Treatment and Research, Cleveland Clinic, Cleveland, OH, USA.
the West Virginia School of Osteopathic Medicine, Lewisburg, WV, USA.
Int J MS Care. 2025 Feb 17;27(Theme):T2-T6. doi: 10.7224/1537-2073.2024-081. eCollection 2024 Dec.
Rural regions face significant health care disparities, including decreased access to insurance, increased access barriers to specialty care, worse medical outcomes, and increased mortality rates. People with multiple sclerosis (MS) residing in rural regions in the United States, as well as globally, face similar barriers to accessing MS care and experience poorer disease outcomes. Barriers to health care access include cultural and financial constraints, scarcity of services, a lack of trained physicians, insufficient public transport, and poor availability of broadband internet service. The Appalachian region, which contains a high degree of rurality, experiences increased disparities compared with the rest of the nation and can be used to highlight the unique challenges rural populations face. Appalachian residents can identify as private, and mistrust is a major factor in providing health care. Increasing the quantity and retention of Appalachian providers is essential to building trust. Still, it has proved difficult due to issues with compensation, taxes, malpractice fees, adverse actions against physicians, and high turnover rates. Telehealth interventions such as Project ECHO (Extension for Community Healthcare Outcomes) have improved rural outcomes in multiple diseases, including MS, but limited technology and technological literacy in rural areas impede the implementation of these interventions. Given the increasing rural population and ongoing disparities these communities face, there is a need to develop targeted interventions to improve access and outcomes in rural populations.
农村地区面临着显著的医疗保健差距,包括保险覆盖面降低、专科护理的获取障碍增加、医疗结果更差以及死亡率上升。在美国以及全球范围内,居住在农村地区的多发性硬化症(MS)患者在获得MS护理方面面临类似的障碍,并且疾病预后更差。获得医疗保健的障碍包括文化和经济限制、服务稀缺、缺乏训练有素的医生、公共交通不足以及宽带互联网服务可用性差。阿巴拉契亚地区的农村程度很高,与美国其他地区相比,差距更大,可用于凸显农村人口面临的独特挑战。阿巴拉契亚居民可能表现得比较内向,不信任是提供医疗保健的一个主要因素。增加阿巴拉契亚地区医疗服务提供者的数量并留住他们对于建立信任至关重要。然而,由于薪酬、税收、医疗事故费用、针对医生的不利行为以及高离职率等问题,这已被证明很困难。远程医疗干预措施,如社区医疗成果扩展计划(Project ECHO),已经改善了包括MS在内的多种疾病在农村地区的治疗效果,但农村地区有限的技术和技术素养阻碍了这些干预措施的实施。鉴于农村人口不断增加以及这些社区面临的持续差距,有必要制定有针对性的干预措施,以改善农村人口获得医疗服务的机会和治疗效果。