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情感性还是信息性?理解癌症患者在在线健康社区中多方面的求助行为。

Emotional or informational? Understanding cancer patients' multifaceted help-seeking behaviors in online health communities.

作者信息

Feng Xiandong, Hu Yinhuan, Pfaff Holger, Liu Sha, Wang Hui, Wang Yangfan

机构信息

School of Medicine and Health Management, Tongji Medical College, Huazhong University of Science and Technology, No. 13 Hangkong Road, Wuhan, Hubei, 430030, China.

School of Medicine and Health Management, Tongji Medical College, Huazhong University of Science and Technology, No. 13 Hangkong Road, Wuhan, Hubei, 430030, China.

出版信息

Soc Sci Med. 2025 Apr;371:117902. doi: 10.1016/j.socscimed.2025.117902. Epub 2025 Mar 1.

Abstract

Although the widespread use of online health communities (OHCs) has transformed how cancer patients interact and acquire information, there is limited understanding of their specific help-seeking behaviors in these digital environments. Based on stress and coping theory, this study develops a framework to examine the patterns and determinants of cancer patients' help-seeking behaviors in OHCs. We collected 19,224 help-seeking posts from a leading cancer-focused OHC in China between January 2016 and July 2023. A mixed-methods approach was employed, combining content analysis through Latent Dirichlet Allocation (LDA) for behavioral pattern identification and beta regression for determinant analysis. The results revealed two primary categories of help-seeking behaviors - emotional and informational - which comprised six distinct topics: daily emotional regulation, community social support, medical options, treatment processes, medical results interpretation, and medication management and effects. Female patients exhibited stronger tendencies toward emotional help-seeking, while male patients favored informational help-seeking. Both increasing age and time since diagnosis were positively associated with emotional help-seeking but negatively correlated with informational help-seeking. Moreover, different cancer types showed distinct patterns in their help-seeking behaviors. This study advances the theoretical framework of help-seeking behaviors in an online context and provides evidence-based recommendations for optimizing OHCs to meet the diverse needs of cancer patients.

摘要

尽管在线健康社区(OHCs)的广泛使用改变了癌症患者互动和获取信息的方式,但人们对他们在这些数字环境中的特定求助行为了解有限。基于压力与应对理论,本研究构建了一个框架,以审视癌症患者在在线健康社区中的求助行为模式及决定因素。我们从2016年1月至2023年7月期间,从中国一个领先的专注癌症的在线健康社区收集了19224条求助帖子。采用了混合方法,结合通过潜在狄利克雷分配(LDA)进行内容分析以识别行为模式,并通过贝塔回归进行决定因素分析。结果揭示了两类主要的求助行为——情感型和信息型——其中包括六个不同的主题:日常情绪调节、社区社会支持、医疗选择、治疗过程、医疗结果解读以及药物管理与效果。女性患者在情感求助方面表现出更强的倾向,而男性患者则更倾向于信息求助。年龄增长和确诊后的时间都与情感求助呈正相关,但与信息求助呈负相关。此外,不同癌症类型在求助行为上表现出不同的模式。本研究推进了在线环境中求助行为的理论框架,并为优化在线健康社区以满足癌症患者的多样化需求提供了基于证据的建议。

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