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本文引用的文献

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Handb Clin Neurol. 2024;202:307-315. doi: 10.1016/B978-0-323-90242-7.00019-5.
2
Multiple sclerosis in Central America and Caribbean countries: frequency and clinical characterization of an emergent disease.中美洲和加勒比国家的多发性硬化症:一种新兴疾病的发病率及临床特征
Front Epidemiol. 2024 Jun 17;4:1368675. doi: 10.3389/fepid.2024.1368675. eCollection 2024.
3
Incidence of Multiple Sclerosis in Uruguay: A Prospective Population-Based Study.乌拉圭多发性硬化症的发病率:一项基于人群的前瞻性研究。
Neuroepidemiology. 2024;58(5):317-325. doi: 10.1159/000538221. Epub 2024 Mar 12.
4
Second Autologous Hematopoietic Stem Cell Transplantation in Multiple Sclerosis: A Single-Center Prospective Experience.多发性硬化症的第二次自体造血干细胞移植:单中心前瞻性经验。
Transplant Proc. 2024 Jan-Feb;56(1):211-214. doi: 10.1016/j.transproceed.2023.12.004. Epub 2024 Jan 4.
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Evaluation of the use of high-efficacy treatments (HETs) in patients with relapsing-remitting multiple sclerosis in Argentina.评估阿根廷复发缓解型多发性硬化症患者中高效治疗药物(HETs)的使用情况。
Mult Scler Relat Disord. 2023 Nov;79:104935. doi: 10.1016/j.msard.2023.104935. Epub 2023 Aug 9.
6
Clinical Pathway for the Diagnosis and Management of Patients With Relapsing-Remitting Multiple Sclerosis: A First Proposal for the Peruvian Population.复发缓解型多发性硬化症患者诊断与管理的临床路径:秘鲁人群的初步建议
Front Neurol. 2021 Oct 21;12:667398. doi: 10.3389/fneur.2021.667398. eCollection 2021.
7
Multiple sclerosis care units in Latin America: Consensus recommendations about its objectives and functioning implementation.拉丁美洲多发性硬化症护理单元:关于其目标和功能实施的共识建议。
J Neurol Sci. 2021 Oct 15;429:118072. doi: 10.1016/j.jns.2021.118072. Epub 2021 Sep 8.
8
Treatment Escalation vs Immediate Initiation of Highly Effective Treatment for Patients With Relapsing-Remitting Multiple Sclerosis: Data From 2 Different National Strategies.复发缓解型多发性硬化症患者的治疗升级与立即开始高效治疗:来自 2 种不同国家策略的数据。
JAMA Neurol. 2021 Oct 1;78(10):1197-1204. doi: 10.1001/jamaneurol.2021.2738.
9
Clinical practice patterns in multiple sclerosis management: Mexican consensus recommendations.多发性硬化症管理的临床实践模式:墨西哥共识建议。
Mult Scler Relat Disord. 2021 Aug;53:103053. doi: 10.1016/j.msard.2021.103053. Epub 2021 May 30.
10
The 1,000th Transplant for Multiple Sclerosis and Other Autoimmune Disorders at the HSCT-México Program: A Myriad of Experiences and Knowledge.墨西哥造血干细胞移植项目完成第1000例多发性硬化症及其他自身免疫性疾病移植手术:丰富的经验与知识
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拉丁美洲的多发性硬化症护理

Multiple Sclerosis Care in Latin America.

作者信息

Rocha Valeria, Navas Carlos

机构信息

From Direccion Nacional de Sanidad Policial, CASMU IAMPP, Hospital Británico, Montevideo, Uruguay.

Clinica Colombia, Hospital San Jose, Bogotá, Colombia.

出版信息

Int J MS Care. 2024 Dec 1;27(Theme):T7-T12. doi: 10.7224/1537-2073.2024-085. eCollection 2024 Dec.

DOI:10.7224/1537-2073.2024-085
PMID:40078445
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11897605/
Abstract

Latin America (LATAM) is a diverse region with more than 30 countries, each varying in cultural, economic, and social aspects. While multiple sclerosis (MS) care in LATAM has improved, there are still challenges to address. Epidemiologic studies have shown varying incidence rates of MS in the region, influenced by factors such as genetics, environmental conditions, and regional diversity. Scientific research on MS in LATAM has increased, with publications and consensus guidelines emerging. However, access to disease-modifying treatments remains a significant challenge in many countries due to affordability issues and limited availability of certain therapies. The region also faces obstacles in providing comprehensive MS care, including rehabilitation programs and diagnosis tools. There are collaborative efforts and initiatives in LATAM that are working toward overcoming these challenges and improving the overall quality of care for people with MS in the region.

摘要

拉丁美洲(LATAM)是一个多元化的地区,有30多个国家,每个国家在文化、经济和社会方面都各不相同。虽然拉丁美洲的多发性硬化症(MS)护理已经有所改善,但仍有一些挑战需要应对。流行病学研究表明,该地区MS的发病率各不相同,受到遗传、环境条件和地区多样性等因素的影响。拉丁美洲关于MS的科学研究有所增加,出现了相关出版物和共识指南。然而,由于可负担性问题以及某些疗法的供应有限,在许多国家,获得疾病修正治疗仍然是一项重大挑战。该地区在提供全面的MS护理方面也面临障碍,包括康复计划和诊断工具。拉丁美洲正在开展合作努力和倡议,以克服这些挑战并提高该地区MS患者的整体护理质量。