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英国诵读困难症群体的研究重点是什么,以及这些重点如何与以往的研究资金投入相契合?

What Are the Research Priorities for the Dyslexia Community in the United Kingdom and How Do They Align With Previous Research Funding?

作者信息

Manning Catherine, Jennings Beverley, MacLennan Keren, Rayat Raveen, Spiller Keith, Joseph Holly

机构信息

School of Psychology, University of Birmingham, Birmingham, UK.

School of Psychology and Clinical Language Sciences, University of Reading, Reading, UK.

出版信息

Dyslexia. 2025 May;31(2):e70004. doi: 10.1002/dys.70004.

Abstract

Targeting research towards areas that matter to dyslexic people and their families is essential for improving dyslexic people's lives. However, we do not know what the dyslexia community's research priorities are and whether they align with current research funding. We categorised previous funding for dyslexia research in the United Kingdom and considered how this aligns with community research priorities, using multiple methods and a participatory approach. We identified that the vast majority (78%) of funding has been spent on research into biology, brain and cognition. Through seven focus groups (n = 37), dyslexic adults and/or family members/carers of dyslexic children expressed that this balance needs redressing, and we identified four important areas for future research, informed by lived experiences. Finally, 436 members of the dyslexia community ranked the importance of research topics in a survey. The top five priorities related to training teachers and professionals, educational supports and interventions, mental health and self-esteem, making services and spaces more inclusive and cognition. Research into genes and risk factors was less prioritised. These results provide a point of reference for researchers and funders to align future research funding with the dyslexia community's priorities so that it can be of translational benefit.

摘要

将研究目标对准对诵读困难者及其家庭至关重要的领域,对于改善诵读困难者的生活至关重要。然而,我们并不清楚诵读困难群体的研究重点是什么,以及这些重点是否与当前的研究资金相匹配。我们对英国以往的诵读困难研究资金进行了分类,并采用多种方法和参与式方法,探讨了这些资金与群体研究重点的匹配情况。我们发现,绝大多数(78%)的资金都用于了生物学、大脑和认知方面的研究。通过七个焦点小组(n = 37),诵读困难的成年人和/或诵读困难儿童的家庭成员/照顾者表示,这种平衡需要纠正,并且我们根据实际生活经验确定了四个未来研究的重要领域。最后,436名诵读困难群体成员在一项调查中对研究主题的重要性进行了排序。排在前五位的优先事项涉及培训教师和专业人员、教育支持和干预、心理健康和自尊、使服务和空间更具包容性以及认知。对基因和风险因素的研究则不太受重视。这些结果为研究人员和资助者提供了一个参考点,以便使未来的研究资金与诵读困难群体的优先事项保持一致,从而产生转化效益。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/47a9/11933878/f934a737b5d0/DYS-31-e70004-g001.jpg

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