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癌症幸存者的互联健康:评估爱尔兰“癌症蓬勃生存计划”的可用性和效用。

Connected health in cancer survivorship: Evaluating the usability and utility of the cancer thriving and surviving programme in Ireland.

作者信息

Gitonga Isaiah, Desmond Deirdre, Mullen Louise, Thomas Dorothy, Osborne Cathleen, O'Loughlin Bernie, Maguire Rebecca

机构信息

Department of Psychology, Maynooth University, Maynooth, Ireland.

Assisting Living and Learning Institute, Maynooth University, Maynooth, Ireland.

出版信息

Ir J Med Sci. 2025 Mar 21. doi: 10.1007/s11845-025-03931-6.

Abstract

BACKGROUND

Cancer survivorship care has become increasingly complex, with a growing population of people living with and beyond the disease requiring holistic support and follow-up. Connected health (CH) offer a promising solution to enhance care delivery.

AIM

This study evaluated the usability and effectiveness of CH, and motivations of participants in the Cancer Thriving and Surviving (CTS) programme in Ireland.

METHODS

A cross-sectional survey of persons living with and beyond cancer (PLWBC) who completed the CH-delivered CTS was conducted between December 2022 and April 2023. Closed and open-ended questions captured participants experiences and motivations. Telehealth Usability Questionnaire (TUQ) assessed the CH usability. Qualitative content analysis examined recurring themes in participant responses.

RESULTS

Forty-four participants who engaged in CTS completed the survey. Participants were predominantly female (88%), diagnosed with breast cancer (76%), and had third-level education or higher (86%). Slightly over one third (36%) were in full time employment. Motivations for engaging in CTS included seeking peer support, psychosocial assistance, and practical self-management tools. Most respondents agreed that the programme improved their psychological wellbeing (90%), quality of life (76%) and helped them take more control of their health (83%). TUQ scores indicated high usability of the CH systems.

CONCLUSION

Findings suggest that the CH-delivered CTS programme effectively benefits PLWBC, improving psychological well-being and quality of life. The high CH system usability and positive user experiences highlight its potential to complement in-person care, supporting the continued development and evaluation of CH systems to enhance cancer survivorship, particularly within Irish digital health initiatives.

摘要

背景

癌症幸存者护理变得日益复杂,患癌及康复后的人群不断增加,他们需要全面的支持和后续跟进。连接健康(CH)为改善护理服务提供了一个有前景的解决方案。

目的

本研究评估了CH的可用性和有效性,以及爱尔兰“癌症茁壮成长与生存”(CTS)项目参与者的动机。

方法

在2022年12月至2023年4月期间,对完成了由CH提供的CTS项目的癌症患者及康复者(PLWBC)进行了横断面调查。封闭式和开放式问题收集了参与者的经历和动机。远程医疗可用性问卷(TUQ)评估了CH的可用性。定性内容分析检查了参与者回答中反复出现的主题。

结果

44名参与CTS项目的参与者完成了调查。参与者主要为女性(88%),被诊断为乳腺癌(76%),拥有高等教育学历(86%)。略超过三分之一(36%)的人全职工作。参与CTS项目的动机包括寻求同伴支持、心理社会援助和实用的自我管理工具。大多数受访者认为该项目改善了他们的心理健康(90%)、生活质量(76%),并帮助他们更好地掌控自己的健康(83%)。TUQ分数表明CH系统具有较高的可用性。

结论

研究结果表明,由CH提供的CTS项目有效地使PLWBC受益,改善了心理健康和生活质量。CH系统的高可用性和积极的用户体验凸显了其补充面对面护理的潜力,支持CH系统的持续开发和评估,以改善癌症幸存者护理,特别是在爱尔兰数字健康倡议中。

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