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利用互联健康为受儿童癌症影响的家庭提供支持的实用性、障碍和促进因素:定性分析。

Utility, barriers and facilitators to the use of connected health to support families impacted by paediatric cancer: a qualitative analysis.

机构信息

Department of Psychology, Maynooth University, Co. Kildare, Ireland.

出版信息

Support Care Cancer. 2022 Aug;30(8):6755-6766. doi: 10.1007/s00520-022-07077-4. Epub 2022 May 6.

Abstract

AIM

As healthcare systems are increasingly burdened, the efficiencies and cost savings offered by connected health (CH, i.e. two-way communicative healthcare technologies such as eHealth or mHealth) present an attractive solution for supporting families impacted by cancer. More research is required, however, to examine attitudes towards CH to better facilitate its use in practice. This study seeks to examine the utility, barriers and facilitators of CH use for families affected by paediatric cancer living in Ireland.

METHODS

Healthcare professionals (n = 5) and parents of children with cancer (n = 7) completed semi-structured interviews on their experiences of and attitudes to CH via Microsoft Teams. A reflexive thematic approach to analysis was employed.

RESULTS

CH was perceived to provide support for a number of current needs with themes of 'shifting responsibilities', 'individualisation of care' and 'knowledge as power'. Through facilitating communication, information sharing and monitoring of child health, CH was perceived to support decreased parental burden and increased parental control, with positive child outcomes thought likely. Perceived barriers and facilitators to the use of CH included the 'importance of trust', 'pace of change' and 'access'.

CONCLUSION

While results suggest an acceptance of CH across key stakeholders, barriers and facilitators should be considered to support effective implementation. While further analysis of the efficacy of CH to support families impacted by paediatric cancer is needed, these findings highlight key areas where CH may be effectively employed.

摘要

目的

随着医疗保健系统的负担日益加重,互联医疗(CH,即双向交流的医疗技术,如电子医疗或移动医疗)提供了一种具有吸引力的解决方案,可以为受癌症影响的家庭提供支持。然而,需要更多的研究来检查人们对 CH 的态度,以便更好地促进其在实践中的应用。本研究旨在探讨爱尔兰受儿童癌症影响的家庭使用 CH 的效用、障碍和促进因素。

方法

通过 Microsoft Teams,医疗保健专业人员(n=5)和癌症患儿的家长(n=7)就他们对 CH 的体验和态度完成了半结构化访谈。采用反思性主题分析方法进行分析。

结果

CH 被认为可以满足许多当前的需求,主题包括“责任转移”、“护理个体化”和“知识就是力量”。通过促进沟通、信息共享和儿童健康监测,CH 被认为可以减轻父母的负担,增强父母的控制能力,从而带来积极的儿童结果。使用 CH 的障碍和促进因素包括“信任的重要性”、“变革的速度”和“获取途径”。

结论

尽管结果表明关键利益相关者对 CH 的接受程度,但应考虑障碍和促进因素,以支持有效的实施。虽然需要进一步分析 CH 对支持受儿童癌症影响的家庭的疗效,但这些发现突出了 CH 可能有效应用的关键领域。

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