Williams Renessa S, Richards Veronica L, Stetten Nichole E, Canidate Shantrel S, Algarin Angel, Fiore Andrew, Cook Christa, Lucero Robert J, Spencer Emma C, Cook Robert L
School of Nursing and Health Studies, University of Miami.
Edna Bennett Pierce Prevention Research Center, The Pennsylvania State University.
Stigma Health. 2024 Aug;9(3):362-371. doi: 10.1037/sah0000458. Epub 2023 May 11.
The purpose of this study is to describe human immunodeficiency virus (HIV)-related stigma and strategies to reduce it in Florida within the context of the social ecological model (SEM). Qualitative surveys were distributed at community events, advisory meetings, and conferences via electronic and paper-based methods to persons living with and without HIV over an 8-month period in 2018. A directed content analysis was used to code the responses of 76 participants (33 persons living with HIV, 43 without HIV) into five levels of the SEM (individual, interpersonal, community, institutional, and structural). Within each level, multiple themes and subthemes emerged: individual-knowledge, fear, internalization; interpersonal-social network; community-judgments, discrimination, community organizations, norms; institutional-competent providers, health care services; and structural-systemic barriers, language, and education. The findings exemplify the need for a multilevel approach that incorporates the perspectives of people with and without HIV to reduce HIV-related stigma in Florida.
本研究的目的是在社会生态模型(SEM)的背景下,描述佛罗里达州与人类免疫缺陷病毒(HIV)相关的耻辱感以及减少这种耻辱感的策略。2018年,在为期8个月的时间里,通过电子和纸质方式,在社区活动、咨询会议和大会上向感染HIV和未感染HIV的人群发放了定性调查问卷。采用定向内容分析法,将76名参与者(33名感染HIV者,43名未感染HIV者)的回答编码到社会生态模型的五个层面(个人、人际、社区、机构和结构)。在每个层面中,出现了多个主题和子主题:个人层面——知识、恐惧、内化;人际层面——社会网络;社区层面——判断、歧视、社区组织、规范;机构层面——有能力的提供者、医疗保健服务;结构层面——系统障碍、语言和教育。研究结果表明,需要采取一种多层次方法,纳入感染HIV和未感染HIV人群的观点,以减少佛罗里达州与HIV相关的耻辱感。