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佛罗里达新生儿筛查项目教育活动评估

Evaluation of the Florida Newborn Screening Program Education Campaign.

作者信息

Richey Mirine, Wilson Cynthia B, Jia Minna, Galbraith Travis

机构信息

Center for Prevention and Early Intervention Policy, Florida State University, 1339 E Lafayette St., Tallahassee, FL 32301, USA.

The Florida Center for Prevention Research, Florida State University, 2200 Old St. Augustine Rd., Tallahassee, FL 32301, USA.

出版信息

Int J Neonatal Screen. 2025 Mar 10;11(1):20. doi: 10.3390/ijns11010020.

DOI:10.3390/ijns11010020
PMID:40136635
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11942722/
Abstract

Florida's Newborn Screening Program campaign aims to increase the awareness and participation of birthing facilities, providers, and parents. This evaluation aimed to determine the effectiveness and reach of the Newborn Screening Program (NBS) Statewide Educational Campaign to pregnant women through surveys and focus groups. The online survey, conducted throughout Florida in English, Spanish, and Haitian Creole, evaluated the reach and effectiveness of educational materials such as paid advertisements and brochures. The surveys also served to recruit participants for in-person focus groups throughout the state. The findings showed that 85.3% of the mothers had discussions with health professionals about the screening program, while others did not hear about it from health professionals. More than 50% of the respondents learned about the program through health facilities, with additional exposure from media platforms such as television, radio, and friends. This study shows the need for increased outreach of the campaign and better communication and education from medical professionals to increase awareness.

摘要

佛罗里达州新生儿筛查项目活动旨在提高分娩机构、医护人员和家长的意识并促进他们的参与。本次评估旨在通过调查和焦点小组来确定全州范围内针对孕妇的新生儿筛查项目(NBS)教育活动的效果和覆盖面。在线调查在佛罗里达州全境以英语、西班牙语和海地克里奥尔语进行,评估了付费广告和宣传册等教育材料的覆盖面和效果。这些调查还用于招募全州范围内参加面对面焦点小组的参与者。调查结果显示,85.3%的母亲与医护人员讨论过筛查项目,而其他人未从医护人员那里听说过该项目。超过50%的受访者是通过医疗机构了解到该项目的,此外还通过电视、广播和朋友等媒体平台有所接触。这项研究表明,有必要加强该活动的推广,并改善医疗专业人员的沟通和教育,以提高人们的意识。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e94f/11942722/573749353936/IJNS-11-00020-g0A4.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e94f/11942722/e9596d0b8caa/IJNS-11-00020-g0A1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e94f/11942722/6d013a69f030/IJNS-11-00020-g0A2.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e94f/11942722/195407c66cad/IJNS-11-00020-g0A3.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e94f/11942722/573749353936/IJNS-11-00020-g0A4.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e94f/11942722/e9596d0b8caa/IJNS-11-00020-g0A1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e94f/11942722/6d013a69f030/IJNS-11-00020-g0A2.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e94f/11942722/195407c66cad/IJNS-11-00020-g0A3.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e94f/11942722/573749353936/IJNS-11-00020-g0A4.jpg

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本文引用的文献

1
Parent Reports of Developmental Service Utilization After Newborn Screening.新生儿筛查后家长对发育服务利用情况的报告。
Int J Neonatal Screen. 2024 Dec 31;11(1):3. doi: 10.3390/ijns11010003.
2
One Size Does Not Fit All: A Multifaceted Approach to Educate Families about Newborn Screening.一刀切并不适用于所有人:一种多方面的方法来教育家庭有关新生儿筛查的知识。
Int J Neonatal Screen. 2024 Jun 26;10(3):44. doi: 10.3390/ijns10030044.
3
Assessing Credibility: Quality Criteria for Patients, Caregivers, and the Public in Online Health Information-A Qualitative Study.
评估可信度:在线健康信息中患者、护理人员及公众的质量标准——一项定性研究
J Patient Exp. 2024 May 31;11:23743735241259440. doi: 10.1177/23743735241259440. eCollection 2024.
4
Bot or Not? Detecting and Managing Participant Deception When Conducting Digital Research Remotely: Case Study of a Randomized Controlled Trial.是机器人还是人?在远程进行数字研究时检测和管理参与者欺骗:一项随机对照试验的案例研究。
J Med Internet Res. 2023 Sep 14;25:e46523. doi: 10.2196/46523.
5
Internet-Based Mental Health Survey Research: Navigating Internet Bots on Reddit.基于互联网的心理健康调查研究:应对Reddit上的网络机器人
Cyberpsychol Behav Soc Netw. 2023 Feb;26(2):73-79. doi: 10.1089/cyber.2022.0173. Epub 2023 Feb 1.
6
Methodological Challenge: Addressing Bots in Online Research.方法学挑战:解决在线研究中的机器人问题。
J Pediatr Health Care. 2023 May-Jun;37(3):328-332. doi: 10.1016/j.pedhc.2022.12.006. Epub 2023 Jan 29.
7
Psychosocial Issues Related to Newborn Screening: A Systematic Review and Synthesis.与新生儿筛查相关的社会心理问题:系统评价与综合分析
Int J Neonatal Screen. 2022 Sep 27;8(4):53. doi: 10.3390/ijns8040053.
8
Parents' views on accepting, declining, and expanding newborn bloodspot screening.家长对接受、拒绝和扩展新生儿足跟血筛查的看法。
PLoS One. 2022 Aug 18;17(8):e0272585. doi: 10.1371/journal.pone.0272585. eCollection 2022.
9
The Value of Cognitive Pretesting: Improving Validity and Revealing Blind Spots through the Development of a Newborn Screening Parent Experiences Survey.认知预测试的价值:通过开发新生儿筛查家长体验调查问卷提高效度并揭示盲点
Int J Neonatal Screen. 2021 Jul 8;7(3):41. doi: 10.3390/ijns7030041.
10
Factors Influencing Parental Awareness about Newborn Screening.影响父母对新生儿筛查认知的因素。
Int J Neonatal Screen. 2019 Sep 18;5(3):35. doi: 10.3390/ijns5030035. eCollection 2019 Sep.