Akhrif Iman, Skalli Sara, Karkouri Samia
Service of Physical Medicine and Rehabilitation, Ibn Sina University Hospital Center, Rabat, Morocco.
Faculty of Medicine and Pharmacy of Rabat, Mohammed V University, Rabat, Morocco.
J Educ Health Promot. 2025 Feb 28;14:49. doi: 10.4103/jehp.jehp_1351_24. eCollection 2025.
Multiple sclerosis (MS) is a chronic inflammatory condition that causes lesions leading to both physical and psychological impairments, significantly affecting daily life. Therapeutic education has been identified as a valuable approach in managing chronic diseases, including MS. This study aims to develop a structured therapeutic education protocol specifically for MS patients, with the goal of demonstrating its positive effects on quality of life. This prospective, descriptive study will examine the effects of a therapeutic education program on the quality of life in MS patients. The study will be conducted at Rabat University Hospital's Physical Medicine and Rehabilitation and Neurology departments. Participants will undergo individualized educational sessions and interactive workshops. Evaluations will be performed at baseline, 3 months, and 6 months using the Multiple Sclerosis Quality of Life-54 (MSQOL-54) and the Measure of Urinary Handicap (M.H.U) scale. Effective management of MS necessitates personalized care strategies, including therapeutic education, which can enhance patient knowledge, self-management, and overall quality of life. This study aims to provide insights into how structured educational interventions can impact MS management and patient outcomes. This study protocol outlines an investigation into a therapeutic education program for MS patients. By addressing disease understanding, symptom management, and psychosocial support, the program seeks to improve patients' quality of life. Future research should assess the long-term effects of such interventions and compare their efficacy with other MS management approaches.
多发性硬化症（MS）是一种慢性炎症性疾病，会导致病变，进而引起身体和心理障碍，对日常生活产生重大影响。治疗性教育已被视为管理包括MS在内的慢性疾病的一种有价值的方法。本研究旨在专门为MS患者制定一种结构化的治疗性教育方案，目的是证明其对生活质量的积极影响。这项前瞻性描述性研究将考察一项治疗性教育计划对MS患者生活质量的影响。该研究将在拉巴特大学医院的物理医学与康复科及神经科进行。参与者将接受个性化教育课程和互动式工作坊。将使用多发性硬化症生活质量-54量表（MSQOL-54）和尿功能障碍测量量表（M.H.U）在基线、3个月和6个月时进行评估。对MS进行有效管理需要个性化的护理策略，包括治疗性教育，这可以增强患者的知识、自我管理能力和整体生活质量。本研究旨在深入了解结构化教育干预措施如何影响MS管理和患者预后。本研究方案概述了一项针对MS患者的治疗性教育计划的调查。通过解决疾病认知、症状管理和心理社会支持等问题，该计划旨在提高患者的生活质量。未来的研究应评估此类干预措施的长期效果，并将其疗效与其他MS管理方法进行比较。
