Mathiebe Josephine, Müller Gabriele, Schmitt Jochen, Brenner Sebastian, Winkler Stefan, Schawohl Anne, Waurig Franziska, Scheibe Madlen
Center for Evidence-Based Healthcare, Faculty of Medicine and University Hospital Carl Gustav Carus, TUD Dresden University of Technology, Fetscherstraße 74, 01307 Dresden, Germany.
Department of Pediatrics, Faculty of Medicine and University Hospital Carl Gustav Carus, TUD Dresden University of Technology, Fetscherstraße 74, 01307 Dresden, Germany.
Children (Basel). 2025 Feb 28;12(3):313. doi: 10.3390/children12030313.
The medical care of critically ill children requires special expertise in pediatric emergency and intensive care medicine. In Germany, this expertise is mainly available in specialized centers at maximum-care hospitals due to the small number of cases of critically ill children. Telemedical care networks, such as the Pediatric-Tele-Intensive-Care Network Saxony, offer a solution for networking these centers with regional hospitals providing basic or standard care. However, the evaluation of these networks represents a major challenge, especially because it involves a heterogeneous target group of patients with various diseases. This article reports on the evaluation design development process for such a network, under equal participation of all relevant stakeholders, and presents the resulting evaluation design. The methods used were a literature review, two workshops, and a survey of all relevant stakeholders (representatives of 17 partner clinics, 4 external experts in pediatric intensive care, and 2 patient representatives). The evaluation design contained proposals for a care objective, outcomes, and the corresponding databases (project database, clinic database, and survey database) to investigate these. Our study can offer other researchers and stakeholders a methodological approach and template for their evaluation design. It is the first published, consented evaluation design for a telemedical care network in pediatric intensive care. When developing and realizing an evaluation design for (tele)medical interventions, including the perspectives of relevant stakeholders, from the outset, it is essential to achieve a high level of commitment to the implementation of the evaluation.
危重症儿童的医疗护理需要儿科急诊和重症医学方面的专业知识。在德国，由于危重症儿童病例数量较少，这种专业知识主要集中在最高级护理医院的专科中心。远程医疗护理网络，如萨克森州儿科远程重症护理网络，为将这些中心与提供基础或标准护理的地区医院联网提供了一种解决方案。然而，对这些网络进行评估是一项重大挑战，尤其是因为它涉及患有各种疾病的异质性目标患者群体。本文报告了在所有相关利益攸关方平等参与下，针对这样一个网络的评估设计开发过程，并展示了最终的评估设计。所采用的方法包括文献综述、两次研讨会以及对所有相关利益攸关方（17家合作诊所的代表、4名儿科重症护理外部专家和2名患者代表）的调查。评估设计包含了护理目标、结果以及用于调查这些内容的相应数据库（项目数据库、诊所数据库和调查数据库）的建议。我们的研究可以为其他研究人员和利益攸关方提供评估设计的方法和模板。这是首个已发表的、经各方同意的儿科重症护理远程医疗护理网络评估设计。在开发和实现（远程）医疗干预的评估设计时，从一开始就纳入相关利益攸关方的观点，对于实现对评估实施的高度承诺至关重要。
