Rapoff M A, Lindsley C B, Christophersen E R
Arch Phys Med Rehabil. 1985 Jul;66(7):427-9.
Parents of children with chronic diseases, such as juvenile rheumatoid arthritis (JRA), are responsible for insuring that their children comply with medical regimens. Assessing the perceptions parents have of problems their children experience in complying with treatment would be useful in advising them of how to help their children. In this study, a questionnaire assessing the frequency and type of problems children experienced in complying with treatments of JRA was completed by 37 parents. The parents reported more problems with range of motion exercises and splint wearing than with medications. The most common negative reactions exhibited by the children included complaining, crying, forgetting to do what was prescribed, and noncompliance. Additionally, nearly 50% of the parents relied on their child's report or were vague about how they assessed compliance. Suggestions for advising parents about how they can assess and improve compliance are offered in this report.
患有慢性疾病（如幼年类风湿性关节炎，简称JRA）的儿童的家长，有责任确保自己的孩子遵守医疗方案。评估家长对孩子在遵医嘱治疗过程中所遇到问题的看法，将有助于指导他们如何帮助孩子。在本研究中，37位家长完成了一份关于评估儿童在JRA治疗过程中遇到的问题的频率和类型的调查问卷。家长们报告称，孩子在进行关节活动度锻炼和佩戴夹板方面遇到的问题比用药方面更多。孩子们最常见的负面反应包括抱怨、哭闹、忘记按规定做事以及不遵医嘱。此外，近50%的家长依靠孩子的报告，或者对他们如何评估依从性含糊其辞。本报告针对如何建议家长评估并提高孩子的依从性给出了建议。
