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“(教育)空间中的自闭症患者:创造我们自己的未来”博士项目设计

The design of the "autistics in (educational) space: building our own futures" doctoral project.

作者信息

Collis Ryan B

机构信息

York University, Canada.

出版信息

Autism. 2025 Sep;29(9):2356-2367. doi: 10.1177/13623613251328495. Epub 2025 Mar 29.

DOI:10.1177/13623613251328495
PMID:40156513
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC12332223/
Abstract

As an autistic researcher and doctoral candidate, I have designed my dissertation research in a way that values the lived experience of my four autistic participants. Using their responses to a series of material objects and a science fiction novel by, and about, an autistic person, I hope to find new and innovative ways to reconceptualize inclusive education in high school. This article explains my theoretical framework and methodology, as well as some preliminary results and discussion.Lay AbstractI am autistic and a PhD student and I look for ways to learn from other autistic people. I gave a group of 4 autistic participants 14 items and asked them to do something with each of them, then send me pictures of what they did. We also all read a science fiction novel written by an autistic author and talked about what we thought was interesting or that felt familiar to us. By using what they shared with me, I want to find ways to make high school more comfortable for autistic students. In this article, I describe how I came up with this plan, what I did, and some of the first things I discovered.

摘要

作为一名自闭症研究者和博士生,我在设计论文研究时重视我的四位自闭症参与者的生活经历。通过他们对一系列实物以及一本由自闭症患者创作并关于自闭症患者的科幻小说的反应,我希望找到新的创新方法来重新构想高中的全纳教育。本文解释了我的理论框架和方法论,以及一些初步结果和讨论。

摘要

我是一名自闭症患者且是一名博士生,我在寻找向其他自闭症患者学习的方法。我给一组4名自闭症参与者14件物品,并要求他们对每件物品做些什么,然后给我发送他们所做之事的图片。我们还都阅读了一位自闭症作者写的科幻小说,并谈论了我们认为有趣或感到熟悉的内容。通过利用他们与我分享的内容,我想找到让高中对自闭症学生更舒适的方法。在本文中,我描述了我是如何想出这个计划的、我做了什么以及我首先发现的一些事情。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/089c/12332223/4f7e58e724d9/10.1177_13623613251328495-fig3.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/089c/12332223/344e9ce91acb/10.1177_13623613251328495-fig1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/089c/12332223/450b861ee5db/10.1177_13623613251328495-fig2.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/089c/12332223/4f7e58e724d9/10.1177_13623613251328495-fig3.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/089c/12332223/344e9ce91acb/10.1177_13623613251328495-fig1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/089c/12332223/450b861ee5db/10.1177_13623613251328495-fig2.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/089c/12332223/4f7e58e724d9/10.1177_13623613251328495-fig3.jpg

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本文引用的文献

1
I was hanging in the air and holding on tight. It's exhausting: An autistic perspective on their journey through the general school system.我悬在半空,紧紧抓住不放。这令人疲惫不堪:一位自闭症患者对他们在普通学校系统中经历的旅程的看法。
Autism. 2025 Jun;29(6):1483-1496. doi: 10.1177/13623613241310295. Epub 2025 Jan 4.
2
A Conceptual Analysis of Autistic Masking: Understanding the Narrative of Stigma and the Illusion of Choice.自闭症掩饰行为的概念分析:理解污名化的叙事与选择的幻象
Autism Adulthood. 2021 Mar 1;3(1):52-60. doi: 10.1089/aut.2020.0043. Epub 2021 Mar 18.
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Challenging Empathic Deficit Models of Autism Through Responses to Serious Literature.
通过对严肃文学作品的反应挑战自闭症的共情缺陷模型。
Front Psychol. 2022 Feb 10;13:828603. doi: 10.3389/fpsyg.2022.828603. eCollection 2022.
4
Overcoming the Double Empathy Problem Within Pairs of Autistic and Non-autistic Adults Through the Contemplation of Serious Literature.通过研读严肃文学作品,在自闭症和非自闭症成年人配对中克服双重共情问题。
Front Psychol. 2021 Jul 27;12:708375. doi: 10.3389/fpsyg.2021.708375. eCollection 2021.
5
An analysis of the reading habits of autistic adults compared to neurotypical adults and implications for future interventions.自闭症成年患者阅读习惯分析与神经典型成年患者对比,及其对未来干预的启示。
Res Dev Disabil. 2021 Aug;115:104003. doi: 10.1016/j.ridd.2021.104003. Epub 2021 Jun 8.
6
The AASPIRE practice-based guidelines for the inclusion of autistic adults in research as co-researchers and study participants.AASPIRE 基于实践的指南:将自闭症成年人纳入研究中,作为共同研究者和研究参与者。
Autism. 2019 Nov;23(8):2007-2019. doi: 10.1177/1362361319830523. Epub 2019 Apr 3.
7
Editorial Perspective: The use of person-first language in scholarly writing may accentuate stigma.编辑观点:在学术写作中使用“人在先”语言可能会加剧污名化。
J Child Psychol Psychiatry. 2017 Jul;58(7):859-861. doi: 10.1111/jcpp.12706.
8
Shared Reading: assessing the intrinsic value of a literature-based health intervention.共享阅读:评估基于文献的健康干预措施的内在价值。
Med Humanit. 2015 Dec;41(2):113-20. doi: 10.1136/medhum-2015-010704. Epub 2015 Jun 12.
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Autistic expertise: a critical reflection on the production of knowledge in autism studies.自闭症专家技能:对自闭症研究中知识生成的批判性反思。
Autism. 2014 Oct;18(7):794-802. doi: 10.1177/1362361314525281. Epub 2014 Mar 17.
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Get into Reading as an intervention for common mental health problems: exploring catalysts for change.将阅读作为常见心理健康问题的干预措施:探索改变的催化剂。
Med Humanit. 2012 Jun;38(1):15-20. doi: 10.1136/medhum-2011-010083. Epub 2012 Feb 18.